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Sandi wrote: Tamar - your counts are down?
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Sandi wrote: KO:
As the years go by, I am becoming more and more convinced that there is too much over-treating going on. Fear of lower than normal counts and the need to want to be 'normal' is influencing decisions. Not much anyone can do about that.
Tamar:
Okay, will look for your thread!
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tamar wrote: Okay, just one more comment here, and then I'll move to my own thread. Sandi, I think you bring up a very salient point. What is the chance that there will be a bad outcome without treating? With a platelet count of 50, I am not going to "take the risk" of a treatment with even a very small chance of a negative outcome. At 15, the odds shift, and at 5, they shift some more.
To turn KO's example on its head...what's the risk of NOT skydiving vs the risk of NOT having a liver biopsy when a doctor has told you you need one? The statistics means something different when other factors are in play. (steps off soapbox).
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EmilyK wrote: We all know the choices are limited and ITP will not kill me. I need to feel safe and be able to have a life other than worrying about my platelet count.
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