Caregiver Support

Caring for a loved one with ITP can be as overwhelming as being diagnosed with the condition. Just as those living with the rare disease experience a roller coaster of physical and emotional challenges, caregivers face their own demands.

At PDSA, we know ITP caregivers are special and need attention, too. In addition to often facing an increased burden of educating themselves about ITP, caregiver burnout can lead to chronic health issues, including chronic stress, fatigue, insomnia, anxiety and depression. While it can be rewarding to care for someone with ITP, it’s important to take care of yourself. Below are resources to help you provide the best care for your special ITP loved one:

Care for the Caregiver

Help, hope & resources for ITP caregivers.

ITP Discussion Group

Be part of the conversation: join PDSA’s ITP Discussion Group.

ITP Research

Explore PDSA’s research programs.

ITP Patient Registry

The ITP Patient Registry collects patient-reported data, making access to registry insights easier and available for ongoing ITP research studies

Awareness Items

Find ITP awareness gear, medical alert items, jewelry, and more.