Hi MelA- I'm sorry that person you know has Nplate as their only option. I had many problems when I was on NPlate, but I think it was worse because the previous doctor had given me too much. Yes I told my new hematologist and my gp about my (bearable but slightly concerning) pain and issues breathing on Revolade. I'll be at the hematologist's this week again and remind him. I can really handle this bit of pain, but I want to make sure it's nothing bad. Most of it is listed as side effects anyway, but it feels strange to me. (Well stabbing pain in the chest and sudden trouble breathing is listed as possible sign of a clot, but it says that problems breathing can also "just" be a side effect... yeah I don't know... I'm probably just saying it's not so bad, because on the other meds it's been worse.)
I'd always ask at least one doctor in person when it's about changing strong meds like this. I think for now I'll be fine with 25mg, but there are also 12.5mg pills. My guess is that'd be too low. I'm also working out a bit now that I can finally do more than walk ten minutes (my feet used to hurt like hell and start bleeding, that's how I discovered I had thrombocytopenia- after buying several pairs of new shoes). Eating a bit less... maybe living healthier again helps a bit. I usually eat quite healthy, but I didn't around christmas and on Dexamethasone.