Video Insights


It’s been said that stories help conquer fear. At PDSA, we’re committed to telling personal stories from ITP patients, their families and those who treat them to increase knowledge, ease anxiety and provide hope.


Living with ITP DVDLiving with ITP: Patients Share Their Stories

A PDSA Member exclusive, “Living with ITP: Patients Share Their Stories” provides an inside glimpse into the lives of ITP patients and family members about their personal journey with ITP, in addition to expert advice on the mechanisms of ITP and treatment options from PDSA Medical Advisors James Bussel, M.D. and Terry Gernsheimer, M.D. Information about how your membership donation makes a difference in the lives of ITP patients is also included.

Become a PDSA Member and receive a complimentary copy of “Living with ITP: Patients Share Their Stories.” (Please allow three to four weeks for your DVD to arrive.)

Become a Member Today!    Renew Today!

 



The Voices of ITP: Personal Stories for Strength

PDSA believes that the patient voice is central for empowering ITP patients to take control of their disease. We share ITP patient voices here to provide insight into what it’s like to face the condition with courage.


Caroline's Story

Caroline Kruse is the Executive Director of the Platelet Disorder Support Association, as well as an ITP patient. In this video Caroline talks about the valuable information, services and community support PDSA offers.

Kristin's Story

Kristin talks about her journey with ITP and how it led her to become involved with PDSA, fundraising events and raising awareness for ITP.

Joan's Story

PDSA Founder Joan Young shares her ITP story and the reasons why she started PDSA.

Jacob's Story

Jacob has been living with ITP since the age of four. This is his story of diagnosis and treatment, which led to a policy of watchful waiting.

Emily B.'s Story

Emily has tried various treatments to control her ITP with different results. In this video, Emily and her family discuss the importance of becoming involved in the ITP community for information and support.

Dale's Story

In this inspiring video, the always-optimistic Dale Paynter shares his story about ITP.

Genevieve's Story

Genevieve has been living with ITP for several years, and she wants everyone to know that "with time and patience you can achieve anything you set your mind to."

Ayla's Story

Ayla was diagnosed with ITP at age three. She and her family discuss her struggle with ITP, and give others helpful advice about living with chronic ITP.

Emily A.'s Story

Emily A. has tried a variety of treatments for her ITP over the last several years. But, one of the most difficult things for her is how to explain ITP to her friends.

 



Educational Insights

Learn more about ITP and gain insight from experts committed to making a difference for patients and their families.


What is ITP?

Michael Tarantino, M.D. and Terry Gernsheimer, M.D. deliver basic information about ITP. They explain what "ITP" stands for and define acute ITP and chronic ITP.


What are the Challenges of Treating and Managing ITP?

Information about treating ITP in children and adults, important drug therapy details and why it’s vital to work closely with your physician throughout the treatment process.


Elusive Remission

Donald M. Arnold, MD, MSc and Emily R. Sokolov, CCPA from McMaster University in Ontario, Canada explain the multiple variables they confront in patients with chronic ITP and the balancing act of treating not just numbers, but also the patient's unique symptoms and circumstances.


Terry Gernsheimer, MD

Dr. Terry Gernsheimer defines ITP and explains the difference between acute, persistent and chronic ITP, in addition to sharing details regarding platelet production and destruction.


James Bussel, MD

Dr. Bussel has been treating ITP patients since 1981. In this video he explains ITP basics, including symptoms, treatments and living with ITP.

 



Expert Opinions in Adult ITP Management

Panelists Ivy Altomare, MD, Duke University Medical Center; Terry Gernsheimer, MD, Fred Hutchingson Cancer Research Center; Keith R McCrae, MD, The Cleveland Clinic; and Elissa Engel, MD, University of South Florida discuss various aspects of and treatment of ITP.


Aggressive Treatments for Managing ITP


Choosing New Agents for ITP


Clinical Management of Corticosteroids in ITP


Considerations for treating ITP in the Future


Corticosteroids in ITP


Counseling Patients on Goals of Therapy in ITP


Diagnosing ITP


The Future of Eltrombopag in HIV-Related Thrombocytopenia


Immunosuppressive Therapy in ITP


Initiating Therapy in ITP


Potential Role of Syk Inhibitors in ITP


Splenectomy vs. Other Therapy in ITP


TPO Receptor Agonists in ITP


TPO Receptor Agonists: Treatment Considerations


Treatment Guidelines for Relapsed/Refractory ITP


Understanding the Pathophysiology of ITP

 



Expressions of ITP: Inside Stories

Inside Stories DVDEvery story is different. Every story makes a difference. We hope you find these stories helpful in your journey with ITP.


Bridget's Story

Bridget was diagnosed with ITP in her 20's. She is determined to live her life and continue to do the things she loves to do. With the help of her family, Bridget is facing the disease head-on and wants to help others do the same.


Brady's Story

Told through the eyes of his older brother and parents, Brady's story is one about the importance of family strength and support when a child is living with ITP.


Advice for ITP Patients: Jennifer

Jennifer, an ITP patient, talks about the importance of educating yourself about the disease, taking care of you and eliminating stress.


Barbara's Story

Barbara was diagnosed with ITP at an early age and has lived with the condition for over 40 years. This is her story of life with ITP, including having a healthy child of her own, adopting a child and using alternative therapies to treat her disease.


Trish's Story

After being healthy her entire life, out of the blue Trish was diagnosed with ITP. She describes her life since then as an emotional roller coaster and encourages other patients to be determined to beat the disease.


Advice for ITP Patients: Andrea

Andrea, an ITP patient, gives helpful advice for those people who have been newly diagnosed with ITP, such as visiting the PDSA website, learning as much about the disease as possible, eating well and having hope.



To see all PDSA videos, visit our YouTube and Vimeo channels

 

 

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