07 Jan A 19-year-old man developed a 'strange rash' before noticing blood in his urine. What was wrong? 07 January 2023 |
26 Apr Meet the Canadian doctors working to identify and treat the rare blood clots linked to COVID-19 vaccines, including PDSA Medical Advisor Donald Arnold, MD 26 April 2021 |
27 Mar Sobi and Platelet Disorder Support Association (PDSA) launch digital diary app for people living with immune thrombocytopenia (ITP) 27 March 2021 |
29 Jan Anti-vaccine activists peddle theories that COVID shots are deadly, undermining vaccination 29 January 2021 |
26 Nov Rigel and Medison Announce Health Canada Approval of TAVALISSE®, an Oral Medication for the Treatment of Adults with Chronic ITP 26 November 2020 |
07 Apr Global Plasma Leaders Collaborate to Accelerate Development of Potential COVID-19 Hyperimmune Therapy 07 April 2020 |
13 Feb Emotional, Cognitive Issues Common in Pediatric Patients With Immune Thrombocytopenia 13 February 2020 |
09 Jan FDA grants avatrombopag Orphan Drug Designation for the treatment of Chemotherapy-Induced Thrombocytopenia 09 January 2020 |
27 Nov Updated international consensus report on the investigation and management of primary immune thrombocytopenia 27 November 2019 |
20 Nov Rituximab After Splenectomy Yields Superior Benefit in Steroid-Refractory ITP 20 November 2019 |
21 Oct Nplate® (romiplostim) Now Approved For Earlier Use In Adults With Immune Thrombocytopenia 21 October 2019 |
21 Oct Rigel Receives Positive Trend Vote from CHMP for Fostamatinib Disodium Hexahydrate for Adult Patients with Chronic Immune Thrombocytopenia (ITP) in Europe 21 October 2019 |
16 Oct Principia Announces Positive Preliminary Data of PRN1008 for Immune Thrombocytopenia in Ongoing Phase 1/2 Trial 16 October 2019 |
22 Jul Shortage Of Life-Saving Infusion Strains Hospitals And Leaves Patients In Limbo 22 July 2019 |
27 May FDA alerts hospitals, laboratories and health care professionals about recall of Beckman Coulter blood test analyzers due to risk of inaccurate platelet analyzing results 27 May 2019 |
12 May Novartis issues voluntary nationwide recall of Promacta ® 12.5 mg for oral suspension due to potential peanut contamination 12 May 2019 |
20 Apr Rare blood disorder almost ended Boise State athlete’s career. It also inspired her. 20 April 2019 |
02 Apr PDSA Named Rare Disease Changemaker by the National Organization for Rare Disorders (NORD) 02 April 2019 |
16 Feb Former NFL pro Jeff Chadwick and Kristen Blackburn host fundraisers for PDSA in Michigan 16 February 2019 |
22 Oct Caroline Kruse Named President and CEO of the Platelet Disorder Support Association 22 October 2018 |
19 Oct Principia Biopharma Announces PRN1008 Receives Orphan-Drug Designation from FDA for Treatment of Immune Thrombocytopenic Purpura 19 October 2018 |
12 Oct Rigel Receives EMA Validation of the Marketing Authorization Application for Fostamatinib Disodium Hexahydrate in Chronic Immune Thrombocytopenia (ITP) in Adult Patients 12 October 2018 |
04 Oct Five-year-old Wrexham boy with unusual and rare disease takes part in photo project to raise awareness 04 October 2018 |
24 Sep Paying Attention to the signals: 23-year-old SCV resident searching for liver-transplant donor 24 September 2018 |
04 Sep Retired teacher and 10-year-old girl form special bond during medical treatments 04 September 2018 |
06 Mar Mother-of-three given six months to live becomes third person in the WORLD to get life-saving cancer immunotherapy - and is now two years in remission 06 March 2018 |
08 Oct Former ‘Tenors’ Singer Remigio Pereira Reveals Health Scare, Shares Update With Fans 08 October 2017 |
22 Sep Splenectomy vs. rituximab as a second-line therapy in immune thrombocytopenic purpura: a single center experience 22 September 2017 |
22 Sep argenx reaches 50% enrollment in Phase 2 clinical trial of ARGX-113 in immune thrombocytopenia 22 September 2017 |
05 Sep Protalex Doses First Patient in Third Cohort of European Phase 1b Study of PRTX-100 in ITP 05 September 2017 |
21 Aug Mum’s heartbreak at having to ban her five-year-old daughter from playing with her friends 21 August 2017 |
02 Aug Protalex Completes Data Analysis of Second Dose Cohort of U.S. Phase 1/2 Study of PRTX-100 in ITP 02 August 2017 |
07 May Rigel Announces Tavalisse™ as Proprietary Name for Fostamatinib in the United States 07 May 2017 |