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NPLATE update incase your thinking of trying it!
- Kelirae24
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- I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
week two same
week 3 went up to 13 on monday down to 8 on wed and back to five on thursday
week four Monday I was at 5 and today 43!!!!!! So excited i really hope it stabilizes
I have had no side effects besides the day i get the shot it makes me extremely tired besides that nothing!
I took nplate after the following didnt work steriods, ivig, rituxin, splenectomy and pretty much eveything
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- server
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- newcreationchangingdaily
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My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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- Kelirae24
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- I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
- Posts: 313
- Thank you received: 38
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- falafal0
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- lucidawn
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It might take a little while to bring them up and stabalize, if its going to work for you. My son didn't respond to low doses at first, he was up to 5mc's per kilo before he had a decent count. Now he's hovering between 150-250k on 1 mc/kilo! He has even skipped a few weeks and stayed above 130k.
I hope you are getting some response soon, and that you have your bleeding under control soon.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).
Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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- Ann
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- Kelirae24
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- I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
- Posts: 313
- Thank you received: 38
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- tacmom
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Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)
Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg
Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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- Kelirae24
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- I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
- Posts: 313
- Thank you received: 38
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- Ann
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That's normal because it takes 4 or 5 days for the stuff to work so for a few days after you've had the injection you're still going down with the last one wearing off. If that makes sense.Kelirae24 wrote: Drs on monday I was at 24 not bad considerin my usual 5, but over the weekend I had to have dropped to break out in so much petechiae anyone have that happen right after their nplate shot? it seems every shot i get i break out before my counts go up? Again I appreciate all your responses its nice to have fellow itp people to talk to
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- Kelirae24
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- I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
- Posts: 313
- Thank you received: 38
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- dhars11
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- Kelirae24
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- I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
- Posts: 313
- Thank you received: 38
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- dhars11
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- Kelirae24
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- I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
- Posts: 313
- Thank you received: 38
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- BernadetteK
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Bernadette
Hi
I was recently diagnosed with ITP and have found the posts related to Promacta informative and interesting. So far we have tried prednisone which worked for about a week. My counts went from 6 to 303 but dropped back to 6 in a week.Dexamethazone had the same effects with 202 to 6 and 202 to 14....
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- myself50
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- Billu62
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My platalet count wen't to 600. Then wen't down two 500
and one week later it's 728. Now it's 250. What a ride.
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