Does anyone else find that all doctors they see all say very different things.
Our heamatologist said that our daughter has an increased risk of internal bleeding if she hits her head (her count is below 20,0000) so we have been given 'open access' to the pediatric assessment unit. So if she hits her head hard, we have to phone then and we go in for them to check her over. She hit her head very gently in January, but she had a huge soft egg on her forehead which once we got to hospital started to swell. They gave her a platelet transfussion just in case she started to have internal bleeding (which the heamatologist said to do) and she stayed in over night. In February she hit her head really hard on a swimming pool floor, there was no bruise at all (as far as I could see, although it was under hair) which I thought was very strange, but they kept her in overnight for obs, just in case.
Yesterday she hit her head on the ground outside and she has a huge swollen forehead and nose, bruised and covered in petechiae, it's the size of a golf ball. Once we got her to hospital we were told they would do blood tests and a platelet transfussion and keep an eye on her overnight. But, then a different doctor decided not to do anything and they just sent her home straight away. I did wonder if because it was a bank holiday, they couldn't be bothered. Anyway, I then overheard them talking saying that actually there is no increased risk of internal bleeding and that actually we shouldn't even have 'open access'.
Also, twice now they have lost my daughters notes (only since October) and the heamatologist was shocked that when she found out that when they gave our daughter a platelet transfussion they didn't do a blood test after as it would have confirmed that it is definately ITP.
It makes me quite annoyed and worried that they all seem to think differently and know one really seems to know what they should be doing. I would assume that the heamatologist should know more than the other doctors, but she obviously hasn't passed her knowledge on.
