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  • CindyL
04 May 2023 09:37
Replied by CindyL on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
That's a better number for you mrsb!  Hopefully it goes up just a tad more or holds steady there.
  • raj369459
04 May 2023 18:35 - 04 May 2023 18:43
Replied by raj369459 on topic My 12 year old daughter with Chronic ITP
Unfortunately my daughter had blood in her brain and her hematologist had to do emergency splenectomy. There was another discovery by her hematologist. She has LRBA deficiency and the previous hematologist forgot to check this report in January this year. I am not sure if they had targeted treatment for LRBA deficiency, her ITP would have been controlled and not go till the stage of splenectomy. Now my daughter has to deal with two issues- one without spleen and another with LRBA deficiency.
  • MelA
05 May 2023 00:22
Replied by MelA on topic JEFF!!!!!
That is good to hear Cindy [and yes, it is frustrating]
  • khakie4
05 May 2023 12:56
LASIK eye surgery was created by khakie4
I am wondering if anyone with ITP has had LASIK eyes surgery? I am currently on Promacta to control my platelets and they have been at 55 for a few months. My doctor thinks it is fine as long as my platelets stay in that range. Just wanting to see if anyone else has had this done. 
  • RR01
05 May 2023 15:07
Replied by RR01 on topic My 12 year old daughter with Chronic ITP
Hope she is doing fine, keep us posted. Let's hope that the splenectomy works for her and she gets out of ITP. LRBA - Are they giving reasons as to why she got that, like is this an acquired condition just like ITP? 
  • raj369459
05 May 2023 15:43
Replied by raj369459 on topic My 12 year old daughter with Chronic ITP
LRBA is an acquired genetic condition. My daughter inherited one bad gene from me and another from my wife. They said that if a child has LRBA deficiency then s/he is prone to autoimmune conditions and one of them is ITP.
  • midwest6708
06 May 2023 09:54
Replied by midwest6708 on topic LASIK eye surgery
I have not had LASIK; but two ophthalmologists, in separate instances, proposed different surgeries to me.  They didn't foresee problems at any count but did require at least 50 for maximum safety.  For every other procedure I've had, including major oral surgery, the doctors wanted a count of 50.  You're probably good to go, but ask at the surgery center you're using to make sure. 
  • JandS
06 May 2023 13:09
Mayo or Cleveland ITP MD? was created by JandS
Hi! Does anyone know of a terrific hematologist with ITP experience at either Cleveland Clinic or Mayo Clinic? Will greatly appreciate any responses!
  • MelA
06 May 2023 13:18
Replied by MelA on topic Mayo or Cleveland ITP MD?
Have you checked their websites?
  • MelA
06 May 2023 13:23
Queen Camilla Question was created by MelA
Can someone tell me why Camilla is "Queen" and Philip wasn't called "King" but Prince??
Is Camilla called Queen or Queen Consort.  I, being an American don't know all this.  I just find it hard to call her "Queen".
Thanks for any insight!
  • JandS
06 May 2023 14:21
Replied by JandS on topic Mayo or Cleveland ITP MD?
Hi! Thanks... we've checked their websites and see a few MDs who treat ITP, but it's difficult to figure out who's really good. I am hoping for a specific recommendation...
  • mrsb04
06 May 2023 14:28
Replied by mrsb04 on topic Queen Camilla Question
Mel
Princes never became kings because they would then out rank their wives who were queens. 

Before Queen Elizabeth  died she decreed that Camilla would be Queen consort.  However invitations to the coronation referred to her as Queen. Presumably the King wished for her to be called that. 
  • MelA
06 May 2023 18:09
Replied by MelA on topic Queen Camilla Question
Thank you mrsb!  Ok, so a King is higher than a Queen.  Is a Queen Consort less than a Queen?
Like I said, I'm having trouble calling her Queen.
I appreciate your help mrsb!
  • MelA
07 May 2023 00:22 - 08 May 2023 00:06
Replied by MelA on topic Mayo or Cleveland ITP MD?
I know you are - but sometimes the websites for the clinics you mentioned will help.

Just my experience - I went to the medical school hospital and saw the head of hematology, he told me "you WILL have your spleen removed!" - that was around 1990-91 and my spleen is still in the same place it was when I was born.

Good luck - hope someone has a recommendation for you.
  • mrsb04
07 May 2023 04:06 - 07 May 2023 04:10
Replied by mrsb04 on topic Queen Camilla Question
Queens are either regnant  or consort. A regnant Queen is first in line to the throne  when the previous monarch dies.
A consort queen is married to or marries a king and has less power than a regnant queen as she cannot appoint a Prime Minister, dissolve parliament or create peerages. 
Our late queen's mother was a consort but was referred to as Queen Elizabeth, note the lack of a regnal number. 
Prince Philip was a consort too. 
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