Mayo or Cleveland ITP MD?

Hi! Does anyone know of a terrific hematologist with ITP experience at either Cleveland Clinic or Mayo Clinic? Will greatly appreciate any responses!

Have you checked their websites?

Hi! Thanks... we've checked their websites and see a few MDs who treat ITP, but it's difficult to figure out who's really good. I am hoping for a specific recommendation...

I know you are - but sometimes the websites for the clinics you mentioned will help.

Just my experience - I went to the medical school hospital and saw the head of hematology, he told me "you WILL have your spleen removed!" - that was around 1990-91 and my spleen is still in the same place it was when I was born.

Good luck - hope someone has a recommendation for you.

Oh, my! Point taken. Thanks for sharing; I'm glad you were able to keep your spleen!

I haven't looked but I wonder if the sites for Cleveland Clinic and Mayo Clinic have the name of the head of the Hematology dept [or hematology/oncology] - could write him/her to see if they have a suggestion on who to see.

I have had a few hematologists since the start of ITP, including one in Tokyo & one in Hong Kong - one here was so so so fantastic but unfortunately he passed away suddenly, his wife wrote each of his patients a personal letter letting us know how much each of us meant to him.  Now I have a hematologist who absolutely LOVES blood (he is also an oncologist because he said you can't just be a hematologist, you need oncology too) - my first visit with him he had a flip chart made up about ITP and also gave me a hand out he'd written about it, he knows a lot about ITP and with that flip chart and handout he had me forever a patient.   After all by the time I became his patient I'd had ITP for over 20 years.  He is a super hematologist, I pray I never need him as an oncologist!   

I do hope you find someone to help you at either of the clinics - seriously, you might write (or email if you can get an email address) the head of the hematology department for advice as who to see.  Or call and get the hematology department.

Thank you for this heartening reply! I am so glad that you've found a wonderful hemo MD; I hope he does well for you for many years. We have had some experience with recommendations from dept heads (tho' not in hemo), and have found that sometimes the one recommended is not necessarily the best (tho' sometimes) but often the one that's new and in need of patients. So, if we can find a recommendation thru another route, we'd prefer that. That said, we may end up going the dept head route. We shall see. Meanwhile, thanks again, and best wishes.