N-acetyl-l-carnitine and alpha lipoic acid

This is not a proposed treatment for ITP, but something to alleviate fatigue, which is my most troublesome symptom day-to-day . I wake up tired and it is down hill from there.

Has anyone tried N-acetyl-l-carnitine (ALCAR) and alpha lipoic acid to combat fatigue? I mentioned the ALCAR to my hemo and he did not advise against taking it. I came across these supplements on chronic fatigue and ms forums...just desperately searching for some tips:S

Am thinking of going down the diet route, but it is somewhat daunting and confusing...

Caro9 wrote: This is not a proposed treatment for ITP, but something to alleviate fatigue, which is my most troublesome symptom day-to-day . I wake up tired and it is down hill from there.

Has anyone tried N-acetyl-l-carnitine (ALCAR) and alpha lipoic acid to combat fatigue? I mentioned the ALCAR to my hemo and he did not advise against taking it. I came across these supplements on chronic fatigue and ms forums...just desperately searching for some tips:S

Am thinking of going down the diet route, but it is somewhat daunting and confusing...

I haven't tried either of the supplements that you mention, but thought I'd pipe in with what has been helping with my energy levels lately. I started juicing in the mornings and have had a significant boost in energy. I do carrot, a good amount of a mix of greens (earthbound farms "power" blend of baby kale, baby spinach, and baby red and green chard), beet, and apple/orange/pear (some amount of fruit for a bit of sweetness).

Overall since improving my diet (I'm trying to eat mostly paleo-ish which means no dairy, no refined carbohydrates, etc.... basically fruit, veggies, chicken/fish/shrimp/beef, eggs, and small amounts of nuts (nut milks, nut butters, etc.)) my energy levels have improved dramatically. This is great because I am always fighting anemia because of ITP related blood loss.

Good luck investigating those supplements, but I personally feel like improving the vitamin and nutrient profile of my overall diet has had a big effect on energy. I'm pretty sure that I had plenty of vitamin deficiencies that I wasn't treating, and improving diet is usually the best way to get better absorption for lots of things.

I definitely think there are great benefits to juicing! I drank a green smoothie (with tons of kale) for breakfast for at least 5 years (3 of which I was in remission.) We moved last fall and I dropped that very healthy habit. I don't know if I would directly correlate that with my recent relapse, but it could could have been one of many contributing factors. Even if juicing doesn't miraculously raise platelet counts, it provides our bodies with great support. Going to try and bring it back into my routine. Thank you:)

I also like the sound of "Paleo-ish"... makes it sound less restrictive. I am having a hard time reducing refined carbs right now with low counts and accompanying fatigue... unfortunately, I replaced my smoothies with an whole assortment of crackers throughout the morning. Would like to cut that and reduce sugar!