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Splenectomy failed. Low platelets. High white blood cell count. High eosinophil

  • Kayla93
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  • I am 25. I have had Chronic ITP for 2 years now but just got diagnosed with it. Currently going through a bunch of tests to try to diagnose something other than Chronic ITP. I am happily married with 3 children. 4 years, 1 year, and i just had my 3rd in J
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6 years 1 month ago #67274 by Kayla93
Splenectomy failed. Low platelets. High white blood cell count. High eosinophil was created by Kayla93
Has anyone had a failed splenectomy? I went for my check up 4 months after my splenectomy. My platelets were 63,000. My white blood cell count was elevated to 11. My eosinophil count was also a little elavated to 66. All my Dr said was that she's doing more blood work. I'm so confused. I'm so hurt. I'm so mad because my body failed the splenectomy. I feel like I lost an organ that now has little to no immune system to myself for no reason. I feel so upset, and angry at my body for this. Anyone else go through this with the platelets, white blood cell count and the eosinophil? What was the result? What happened? Please help. I'm desperate for advice on this.
Platelets please..
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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6 years 1 month ago #67276 by mrsb04
Replied by mrsb04 on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
In the UK 11 is the upper limit of normal for a wcc. My understanding is that eosinophil count is often higher post splenectomy so try not to worry too much.
Sorry to hear your splenectomy failed. Unfortunately there never was cast iron guarantee it would work. I think you knew that though before you went ahead. There really is no point in being angry at your body for a decision you made.
  • Kayla93
  • Topic Author
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  • I am 25. I have had Chronic ITP for 2 years now but just got diagnosed with it. Currently going through a bunch of tests to try to diagnose something other than Chronic ITP. I am happily married with 3 children. 4 years, 1 year, and i just had my 3rd in J
More
6 years 1 month ago #67278 by Kayla93
Replied by Kayla93 on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
Yes I knew there was a chance it would or wouldn't work
My thing is that I was hoping it would that's why I'm upset. I was really hoping so and it didn't.
Platelets please..
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6 years 1 month ago #67279 by CindyL
Replied by CindyL on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
Kayla, I went into my splenectomy hoping it would work, but wasn't mad when it didn't. I knew at my age there was a chance it wouldn't. I was sorry it didn't work, but just shrugged my shoulders and moved on. Stayed on prednisone and IVIG when counts got too low.
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
6 years 1 month ago #67280 by mrsb04
Replied by mrsb04 on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
Kayla
I understand you pinning your hopes on it working. I nurse dialysis patients who wait for transplants. It's heartbreaking for them if their transplants fail and, even though they knew it might not work, end back up on dialysis. Being a parent is rewarding (being a grand parent even more so) but 3 children under 5 must be hard work at times without having to manage your ITP as well. An emotional rollercoaster; you must be exhausted. Try not to get too disheartened, you can't change the past. Look to the future, there are medical options open to you. Enjoy your family .
  • Kayla93
  • Topic Author
  • Offline
  • I am 25. I have had Chronic ITP for 2 years now but just got diagnosed with it. Currently going through a bunch of tests to try to diagnose something other than Chronic ITP. I am happily married with 3 children. 4 years, 1 year, and i just had my 3rd in J
More
6 years 1 month ago #67281 by Kayla93
Replied by Kayla93 on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
It is very exhausting. I just realized what my Dr sent me for more blood work for. It was called a flow cytometry blood test. So I'm hoping those results at least come back good. Thank you for your kind words. ❤️
Platelets please..
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6 years 1 month ago #67284 by poseymint
Replied by poseymint on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
There is such a thing as partial remission from splenectomy. Its where the splenectomy keeps a person's platelet count in the safe zone though not as high as normal. So if your counts are 63 that is not a total crash, theres still hope. Also I wonder if you have an infection, virus, cold or anything that might cause your white cells to be elevated? Sometimes when ITP people are ill their platelets go down, then back up when they recover. Just a thought..

Very disappointing if your splenectomy failed, and its natural to have hard feelings about it. Easy to lose sight of all your wonderful blessings. I have always been glad that I was the one who had ITP and not my child. Also going to a cancer clinic made me thankful that all I had was ITP. Take care- hope your blood results are good!
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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6 years 1 month ago #67290 by Hal9000
Replied by Hal9000 on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
I dunno Kayla. As I recall I had you pegged as row 3 in my treatments table, same row as me. Things seem to move slower for them/us. I wouldn't put it past your immune system to hold around some number (above 30?) for years to come.
ITP Types and Treatments by HAL
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6 years 1 month ago #67305 by JJ
Replied by JJ on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
High white count and high eosinophils is normal in people without a spleen.

Here's a report about high eosinophils.
www.researchgate.net/publication/51919204_Increased_eosinophilic_responses_in_splenectomized_patients

And as the others said your platelet count may stay at a reasonable level and where it is now is fine.
  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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6 years 1 month ago #67320 by karenr
Replied by karenr on topic Splenectomy failed. Low platelets. High white blood cell count. High eosinophil
Kayla, did you not have any blood work done during the 4 months after your splenectomy? Or did you--and your numbers were high until now? (I had varying numbers until 2-1/2 months when a 10K reading made us know for sure the splenectomy was a failure.)
Many of us have had failed splenectomies. I remember my disappointment. Not having a spleen hasn't affected me much , however. I know it doesn't help much, but there are a lot worse things than ITP. Even though we all desperately wish we didn't have it.
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