Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

ITP and working

More
6 years 2 months ago - 6 years 2 months ago #67207 by nick2182
ITP and working was created by nick2182
Hello all,
I have a bit of a question/scenario that I'm hoping fellow ITP people can help me with. It's a bit of a saga, but I'll make it short and sweet. I've recently been medically discharged from the Australian military due to having chronic ITP. Platelet counts have fluctuated over the years - 10, 23, 35, 40 etc. The condition is considered chronic and I have been on and off prednisone and anti-bleeding medication to stop spontaneous nose and gum bleeds etc. I also experience large bruising when carry out normal daily tasks.

Does anyone know if there are restrictions for people with ITP to be able to perform medium to heavy physically demanding civilian employment roles? The military is trying to tell me that ITP will not cause me to stop working in specifically "medium to heavy physically demanding roles" (such as a storeman/storeperson). Therefore I am NOT eligible for a small service pension due to the retiring condition (ITP) not impacting my ability to work in the above role I just mentioned.

Does this seem correct? I thought that having a bleeding disorder and the associated effects of treatment would incapacitate me to at least 30% in medium to heavy physically demanding roles.....so I would be eligible for a small service pension. Any ideas???
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
6 years 2 months ago #67211 by mrsb04
Replied by mrsb04 on topic ITP and working
If It's anything like the UK I doubt you stand a chance. I'm a front line NHS nurse, which is extremely demanding both physically and mentally, and am expected to work whatever my counts. I asked about early retirement due to a bleeding disorder and was told not a hope in hell.
More
6 years 2 months ago #67212 by nick2182
Replied by nick2182 on topic ITP and working
Thanks for the info and I hope you’re fit and healthy.

There’s specific assistance for veterans who are medically retired but they are saying ITP doesn’t fit the bill. It’s incredibly frustrating. I’ve been shown the door with no income coming in. I’m terrified
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
6 years 2 months ago #67214 by mrsb04
Replied by mrsb04 on topic ITP and working
Sounds dreadful. Presumably the military are saying you are unfit for military service but not civilian work.
  • karenr
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
More
6 years 2 months ago #67219 by karenr
Replied by karenr on topic ITP and working
My guess is that the military doesn't consider this physical work dangerous to you--that is, you might not be in danger of accidents which might result in a brain bleed. Some ITP folks though have fatigue which would make most jobs difficult. Would your doctor be willing to support you in this?
More
6 years 2 months ago #67230 by nick2182
Replied by nick2182 on topic ITP and working
Thanks all for the reply

Yeah the military is saying unfit for service due to the potential for bleeding issues and not being able to guarantee access to medical treatment if deployed etc

However my military superannuation - which is who will pay me an invalidity benefit is saying I can be a storeman and having ITP won’t effect that job. So no $$.

My heamo is pretty good and I think he will write something to the contrary. All I have to hit is 30% invalidity and I get a small pension. It’s so frustrating
More
6 years 2 months ago #67232 by MelA
Replied by MelA on topic ITP and working
What is a storeman?

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
More
6 years 2 months ago #67239 by nick2182
Replied by nick2182 on topic ITP and working
Like warehouse work
The following user(s) said Thank You: MelA
More
6 years 2 months ago - 6 years 2 months ago #67249 by JJ
Replied by JJ on topic ITP and working
Won't they just expect you to treat, not with steroids but something else, to get a decent count so that you can work? They would in the UK. ITP is no reason not to work.
More
6 years 2 months ago #67252 by MelA
Replied by MelA on topic ITP and working
Nick would that be the only work available to you?
Are you treating now? What count do you normally have? What do you treat with if you need to treat?

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD