My name is Melinda and I'm a married, 32 year old mother with ITP.
I started this "jouney" in august of 2015, after about 2 weeks of such bad fatigue that I woke up (barely) one morning and could not walk. After a trip to the ER with my husband we were told to go to my Dr for any kind of answers. Lucky enough for me my mother works for a medical company and we got seen the same day. It was possibly the worst experience of my life.
After being asked how it was possible that I was not in a coma (my TSH levels were 215. Normal is between 2-5), I was diagnosed at that point with Hashimoto's (underactive thyroid) and ITP shortly after. I was told at the time that majority of my symptoms were based off of my thyroid, and that with a medication it would fix everything. Well, how wrong they were. I started to have adverse reactions to everything they put me on, including 3 of 4 thyroid medications (some as severe as congestive heart failure symptoms).
Now to make a very long story short, it is two years later, I now have a new endocrinologist, am currently on a different medication, and my TSH has balanced out. Low and behold though, I am still having the same symptoms I had 2 years ago when this all started. I have numerous doctors, all of which I see more then my own husband, and still no one can seem to give me any answers as to what can help me feel better.
I have tried supplements, I have tried steroids (which were good while on them, but the backlash of being off them had me couch bound for about a week), steroid shots (since they said the previous oral dosing gave me a stomach ulcer), and finally a high potency iron supplement to counter act my anemia.
The doctors also originally told me my conditions were caused by the fact that I was auto immune deficient, but thanks to every single blood test known to man (several times over) that was disproved (or according to them isn't in it's showing phase). I have also recently been told that it could possibly be from a metal poisoning (thanks to my tattoos *rolls eyes*) or quite possibly because I have some type of B19 virus (fifths disease).
Now I have done so much reading on all of this stuff, that my eye balls have quite literally gone on vacation and I can no longer feel my brain (had to joke in the seriousness somewhere lol). My question is, anyone else have a similar story, or symptoms, problems, whatever your choice of calling them is? And possibly any types of answers or solutions big or small? I'm well aware there is no cure to either of my "conditions", but I had to quit my job, my poor husband has been wracked with worry and not sure how to support me or if he even can (lol) and my poor kids have had to take up the burden of helping me with all the stuff that I should be doing for them It has literally torn my life apart, so any advice or even just kind words of not being alone in this would definitely help.
Thanks for reading all this. And good luck in your own jouney! Blessed be. -M[/color][/color]
Topic Author