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Changing cities and hematologists

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9 years 1 week ago #55813 by Nomad
Changing cities and hematologists was created by Nomad
I've had ITP for decades. I went through a long period of quiet. The last year has been very complicated and my last count was on the low side.

In approx. one year (Sept. 2017) we will be moving to another city within our state about four hours away.

Since, I know what city we are moving to and visit that city often AND I'm in the middle of a low count, and there are some complications involving my ITP, I'm finding my issues with low platelets very stressful.

Anyway, I just made an appointment with a recommended doctor in the upcoming city we will be moving to.

If you were going to change hematologists, what would you want to ask this person? Not sure yet, but I might interview a second hematologist as well (I doubt I'll do more than two). Just want to get this all clear in my head. I know it is a year away, but this one particular thing is causing me the most stress probably out of everything, so I figure if I can find a doctor I like than this is much of the battle.

Thank you.
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9 years 1 week ago #55816 by Rob16
Replied by Rob16 on topic Changing cities and hematologists
I am not sure of the right questions to ask, but I would be most interested in finding out how the doctor feels about keeping you informed, having you involved in the decision making process, and about you having the final decision of how and when to treat.

If you have had ITP for decades, it will be difficult to find a doctor who knows as much as you do about ITP, and impossible to find one who knows about you as well as you do.
The following user(s) said Thank You: Nomad
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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9 years 1 week ago #55817 by Hal9000
Replied by Hal9000 on topic Changing cities and hematologists
Spurred on with what Rob said, I would look for someone that knew as much about ITP as I could. Also,
I would write down a summary of what treatments and results you've had over the years and give it to them at the interview. Ask him what he thought. If he had treated other patients similarly.

Good luck.
The following user(s) said Thank You: Nomad