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Stress,Depression & ITP

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10 years 11 months ago #44876 by SuperDave1
Stress,Depression & ITP was created by SuperDave1
:dry: Does anyone else believe , as I do , that stress & depression contribute greatly to low
platelet counts !!!! ????
Been fluctuating between 60k & 150K ...... last 10/28/14- was -78k
trying to improve my situation , 1)recently started to see a nutritionalist (PALEO Diet )
2) exercising 1st time since aged mid-forties
3) returning to religion (Presby)
after 1 year of neglecting
but financial difficulties,causing enormous strain on my marriage and Family has me down,down,down.
considering therapy but, financial woes have me apprrehensive .
Been on SS DIS & unable to work more than 1-day / week since Brain Surgery 1 yr ago !
Is anyone here going to the ITP support meeting in Morristown on 11/8-Sat ?
I have been looking fotrward to it since I entered the forum.
I'm a male starting from scratch again @ 56 .
Please forgive my negativity, as I swore I would only try 2B (posetive/Helpfully /supportive)
on this forum !!!BUT seems as though I cannot find anything to be thankful for recently.
I have even lost my desire to go fishing . (that has never Happened )

Again please forgive but I could use some feedback !

SuperDave
Trying to stay posetive
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10 years 11 months ago #44880 by John
Replied by John on topic Stress,Depression & ITP
Hi Dave,

Read the 5th post in this thread.

www.pdsa.org/forum-sp-534/8-natural-treatment-methods/28277-probiotics.html

cheers,

john
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  • Sandi
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10 years 11 months ago #44881 by Sandi
Replied by Sandi on topic Stress,Depression & ITP
Dave:

It's okay to ask for help, especially here. We have all needed it at one time or another. No one can be positive all the time and life throws things at you that you cannot control.

I have not noticed that stress has ever directly caused my counts to go down, but I do believe that stress can affect overall health in so many ways. People always tell you that the answer to that is to avoid stress. I have found that to be impossible so it's not very realistic. Sometimes you have no control over what is happening to you so how can it be avoided? The only way to try to tackle it is to solve one problem at a time the best you can.

Depression is a whole other subject. It's common to feel depressed when you're dealing with health issues. People don't realize until they have problems like that just how important health is. I could write a book about that. I am also on SSDI (not for ITP), started at the ripe old age of 50. It's hard not to feel sad and, I hate using this word, self-pity, for all the things that you've lost. I can tell you what helps me from falling into that hole. I don't know if it will help you, but it's worth a shot.

I make lists every day....things that I make myself accomplish. If I didn't, I would probably sit around and do nothing which only makes it worse. I make myself get up at 7:30 every day. I set my alarm. If I didn't, it would be easy to sleep until noon and waste the day. I like to feel as if I accomplished something and even though I don't get a lot done, I feel good about what I can do. I know that I need to feel a purpose for my days and even if it's getting a load of laundry done and cleaning the toilet, I feel good about that. I was always someone who structured every minute of my time and I can't turn that off. It turned out to be a good thing though as it's really helped now.

I never really feel up to going anywhere either, but I force myself to. Not often, but at least once a month I make some sort of plans and since I can't stand to let people down, I make myself go. I'm always better off that I did. Being a recluse can, and does, make it all worse. So call a friend and make plans to go fishing....then you have that obligation to go. You'll go and you will feel a bit better.

A therapist isn't a bad idea. I have one. Sometimes it's all just too much to handle and it helps to talk about it. I wouldn't say that he has solved all of my problems or gave me any magic advice, but I can figure things out just by talking about them. If money is a problem, schedule them every other week or once a month. I do that until I meet my deductible every year. There are also some free mental health places which are based on income. You could look into that.

It's hard to pull yourself out of the hole, but your life won't change or get any better unless you take the steps. I have also found that doing things for others can help. I don't want to feel like my life is a waste, so I do things like make scrapbooks for my kids with all of the pictures from their childhood. I worked on those for months last year. It's probably not something you would do, but the point is to leave something for your kids that they will always appreciate. I'm sure there is some hobby that you can do. It gives you a reason to want to wake up and although it isn't much, it's something to look forward to.

Your counts are pretty good and in a safe range; are you not happy with them as they are? It seems that you are on the right track with trying to change your eating habits, exercising and going to church. I pretty much eat Paleo also and have noticed some improvement. Getting out with others will also help. As far as exercise, looks like we are in this together. I just started exercising too. I needed to lose 30 pounds, I've gained 20 since I quit working. I started trying to walk on the treadmill every day and so far, between the walking and diet changes, I've lost 10. Not only is it beneficial for health reasons, but it gives you a goal. That will also help with depression.

I don't have all of the answers and have many down days myself, but I do know that keeping yourself busy and not allowing excuses will make a tremendous difference. Follow through with the plans that you listed and keep going. I call myself a Plugger a lot of the time and I am not ashamed of that. It makes me keep going!
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10 years 11 months ago - 10 years 11 months ago #44884 by meredithjane
Replied by meredithjane on topic Stress,Depression & ITP
Hi Dave,
I'm sorry you're going through a tough time lately.
I agree wholeheartedly with Sandi. I think it's important to focus on the good things in life & appreciate family, friends & community we live in. Also know that there are always others suffering worse & you may be able to support them with your empathy.
As for financial advice, there are plenty of good sites online offering suggestions on budgeting, saving & simplifying one's life.
Best wishes,
mj
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10 years 11 months ago #44888 by Rob16
Replied by Rob16 on topic Stress,Depression & ITP
Hi Dave,

I don't know if stress and depression contribute to low platelet counts, but the reverse is certainly true!

I am sorry you are going through rough times. The exercise is really important - studies show it is more effective than antidepressants. Therapy is expensive, but maybe your church can help, if not with actual therapy (which some churches offer), then with pastoral counseling, which may be all that you need. I would advise you to involve yourself socially as well with your church as much as you are able.

Now I need to go and follow my own advice! And Sandi's, too!
The following user(s) said Thank You: SuperDave1
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10 years 11 months ago #44894 by MatthewR
Replied by MatthewR on topic Stress,Depression & ITP
I'll echo what others have said - I'm sorry to hear you're having a tough time as of late.

And, firstly, kudos to realizing that you need to make changes to deal with stress and depression. It's one thing to know there's a problem, it's another to initiate changes.

Second, much like treatments for ITP, you have to find what works best for you to cope and manage your emotions, stress and depression. Everything already mentioned is very much worth looking into. I'd add meditation and reaction techniques. There are some audio books/guides that can help with those. Maybe yoga or Pilates, which would combine physical and mental health. Be open minded, try things to find what helps you out the most.
The following user(s) said Thank You: SuperDave1
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10 years 11 months ago #44899 by GhostRider
Replied by GhostRider on topic Stress,Depression & ITP
Hey Dave,

Both times my platelets crashed was after I had been suffering from a long period of very intense stress.

So did the stress cause the drops, I honestly do not know, what I do know is that I was diagnosed with ITP when I was 17 and it wasn't until I was 32 that they dropped low enough (3 count) that I needed treatment.

The same again a couple of years later (8 count).

Both times coincided with major stress.

In my own experience I would stress played a very big part for me.
The following user(s) said Thank You: SuperDave1
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10 years 11 months ago - 10 years 11 months ago #44904 by John
Replied by John on topic Stress,Depression & ITP
Hi GhostRider,

That has been my experience. I define it more as chronic stress, something that you endure over many weeks/months. In my case it has been related to major international moves (we did three) or something involving the financial markets. However, I think there are other underlying factors that set you up for a platelet crash. If you figure out what these other factors are and respect them, you will not likely be as vulnerable. JMHOC. It took years before I made the connection. I'm an ITPer since the 1980s ...

cheers,

john
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10 years 11 months ago #44905 by SuperDave1
Replied by SuperDave1 on topic Stress,Depression & ITP
Thank You Sandi, i did used 2 make daily lists , now i'll try again. is true I don't want 2 see others but, starting to....
dave
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10 years 8 months ago #46015 by SuperDave1
Replied by SuperDave1 on topic Stress,Depression & ITP
Sandi,
You ave Kids ?
Home with you ?
Found that (separation Anxiety 2b toughest adjustment ! ! )
SuperDave
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10 years 8 months ago #46024 by Sandi
Replied by Sandi on topic Stress,Depression & ITP
I have three kids, Dave. One lives in CA (I'm in PA), another lives about 35 minutes away and my youngest is still living at home. My anxiety comes from worrying about the two who do not live closer to me. They are young women on their own.

How have you been doing?
The following user(s) said Thank You: SuperDave1
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10 years 8 months ago #46239 by SuperDave1
Replied by SuperDave1 on topic Stress,Depression & ITP
hi Sandi
THanks as always...
hope I'm not getting too personal....
but( understand if no answer )
Eastern Central or Western PA ?
wondering if u attend ITP meetings in NJ.
How am i ?
emotionally hurt as wife wants Separate/Divorce.....
tough , I don't but must accept . REASON ,
She "does not want to watch me DIE "
Will get platelets checked tomorrow..
lets see if stress really does hurt as much as i think.
hope UR better ... as I look forward to your input !!

SuperDave
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10 years 8 months ago - 10 years 8 months ago #46244 by Aoi
Replied by Aoi on topic Stress,Depression & ITP
That's horrible. I went through something similar years ago. My then-wife decided asked for a divorce when I was being evaluated for a possible medical problem (not ITP). Just the thought of something medical was enough to scare her off. It hurt at the time but I'm glad that she removed herself from my life, since I'm better off now without such a person in my life.
The following user(s) said Thank You: SuperDave1
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10 years 8 months ago #46250 by Sandi
Replied by Sandi on topic Stress,Depression & ITP
Dave:

I live near Pittsburgh and no, I do not attend meetings in NJ.

I'm sorry to hear about your wife. It's a shame that she won't support you and learn about your medical issues. You'd be happier and she would realize that you are not going to die just yet (and not for a long time)!

My input: Nothing earth-shattering here....you cannot change your wife's attitude but you can change your own. Do not sit in the house with the shades drawn. Go outside, breathe fresh air, smile and wave at your neighbors even if you don't like them. Get a pet...something to love and take care of. Stay busy and remind yourself everyday that you don't need people in your life who are not on your side. Find a support group and go!
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10 years 8 months ago #46254 by Rob16
Replied by Rob16 on topic Stress,Depression & ITP
Dave, you mentioned in your first post that you were returning to your Presbyterian faith. One thing Christian churches are especially good at helping with are issues of forgiveness. After all, forgiveness is the most important lesson to be taken from the Crucifixion. If you are like me, going through what I went through - my God, it's been 19 years now - then you have a lot of hurt that turns into anger, which turns inward into depression, which takes on a life of its own.

Forgiveness is not a fix-all, but you have a lot to forgive: your wife, for not giving you the faithfulness she promised; yourself, for not being strong enough to keep her, or to keep moving in the right direction; God, for dealing you such a crummy hand. Forgiveness allows you to let go and to move on with your life.

Get some pastoral counseling. Your church may even have divorce groups and forgiveness groups. Find some books to read on forgiveness. Google forgiveness. Google forgiveness quotes. Google forgiveness movies.

This is not the answer, but it is part of the answer. There is no one thing, so do everything you can to fight off this hideous disease. I'd bet that the mortality rate for depression is much higher than for ITP.
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  • Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17
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10 years 8 months ago #46278 by CindyAnn
Replied by CindyAnn on topic Stress,Depression & ITP
Dave,

Having ITP can be frustrating, miserable, anger inducing and downright depressing when we hit those speed bumps that are there for no reason at all. Some days the only way to see the sunshine is read this board and know that all of us here CARE!!! We know what you’re going thru (with the ITP) and we know that having that emotional support is very important.

Please know that venting here is perfectly alright even when it's not about ITP - I don't mean to speak for everyone - but on this one I think I'm right.

Bless you and know you have support here!!
The following user(s) said Thank You: SuperDave1
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10 years 7 months ago #46343 by SuperDave1
Replied by SuperDave1 on topic Stress,Depression & ITP
Rough nite , home alone while my wife is playing....

not happy
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10 years 7 months ago #46345 by SuperDave1
Replied by SuperDave1 on topic Stress,Depression & ITP
THANK YOU
Rob you hit the nail on the head ! with my Anger & depression !!!

advice from u is the same as my beloved sister....
so gonna ride that horse ,
seeking help from PASTOR !!!

Love Thanks SuperDave
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10 years 7 months ago #46575 by SuperDave1
Replied by SuperDave1 on topic Stress,Depression & ITP
Rob,
finally compromised my pride & got Pastoral help
saw her 2/19.
Reached out ! Hurts...
Thank You
Will Google forgiveness
& get back to you
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10 years 7 months ago #46578 by Rob16
Replied by Rob16 on topic Stress,Depression & ITP
Dave,

You've got your work cut out for you.
I am sorry that it hurts, but that is unavoidable.
Better to feel the pain than to go numb.
No way to go around it... gotta go through it.
It can be humbling or humiliating... your choice.
Feel free to private message me any time.

--Rob
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10 years 6 months ago - 10 years 6 months ago #47880 by SuperDave1
Replied by SuperDave1 on topic Stress,Depression & ITP
now.. horible news....
my son Richie...
gone ! 3/30/15 Car accident ! only 31 years ???
what is next ?
please God no more..please respond if u know me I need...
  • CindyAnn
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10 years 6 months ago #47986 by CindyAnn
Replied by CindyAnn on topic Stress,Depression & ITP
my heart goes out to you Dave --- many hugs
The following user(s) said Thank You: SuperDave1