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Paleness

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13 years 2 months ago #26668 by Eman
Paleness was created by Eman
I had an ivig like a week ago. (My second one) and recently iv'e become extremely pale. Especially my hands. I went to the hospital last night and they ran blood test and everything was okay except my platelets witch were 94,000.
Does anyone know why I'm so pale?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 2 months ago #26678 by Sandi
Replied by Sandi on topic Paleness
You went to the hospital because you are pale? No, I don't know what could cause that other than Raynaud's.
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13 years 2 months ago #26685 by Eman
Replied by Eman on topic Paleness
Yea, the paleness cause me to have a panic attack. I'm a hypochondriac.
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13 years 2 months ago #26688 by Dean
Replied by Dean on topic Paleness
Have you had your blood glucose level checked and are you drinking enough fluids, like water?
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13 years 2 months ago #26692 by BethF
Replied by BethF on topic Paleness
My son, Brady, has had IVIG many times. He doesn't use it as a treatment any more because he would get extreme headaches, nausea and vomiting after IVIG treatments. But even after the headaches, etc., would end he would be really pale for a week or so. The same thing happens after WinRho. He also gets really pale when his count is low - it's one of our few telltale signs. I don't have any answers for you as to why it happens, but wanted to let you know that it does happen with others as well.

I hope you're feeling better soon -

Beth - mom to Brady (age 19, diagnosed 1/18/02) and Matthew (age 21)
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13 years 2 months ago #26693 by Eman
Replied by Eman on topic Paleness
Thank, I'm glad to hear im not the only one.
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7 years 9 months ago #62026 by Scloud3383
Replied by Scloud3383 on topic Paleness
My 11 year old daughter was diagnosed on Monday with ITP. She was extremely pale and pouring an abnormal amount of blood during her period. Her platelet levels were at 9,000. The doctor said they were extremely and critically low. They gave her the IVIP treatment and Tuesday night her levels were 31,000 and this morning they had risen to 60,000. They released her with a follow up with a hematologist on the 19th. I noticed tonight that she had gone extremely pale again from head to toe. I’ve been making her drink a lot of fluids hoping that would help. I am so very new to this. I just wanted to know if this happens should I take her back to the hospital or is there something that I can do for her personally. She keeps telling me she doesn’t feel bad but she literally looks like a ghost. I am so afraid that I am going to do something wrong or not act quick enough. Any help would be greatly appreciated. The worst words I’ve ever heard in my life was when I was told my child nearly bled to death. Her bleeding has slowed down tremendously after the treatment was given but I don’t know what to do about the paleness. Please help!!!!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 9 months ago #62030 by Sandi
Replied by Sandi on topic Paleness
It's possible that she is pale from blood loss. That can cause anemia which will make a person pale. There isn't anything you can really do about it. Did they say if her iron levels were okay?

As long as she isn't bleeding, she's okay. She doesn't need medical treatment for being pale unless her red cells are low. Keep an eye on her platelet levels. IVIG usually doesn't last that long and counts may drop again. Low counts themselves are not a medical emergency, but symptoms (such as bleeding) can be.