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Here is a PDSA forum search on the term 'CBD'. From what I recall, it doesn't seem to affect platelet counts, good or bad.Jacyoga wrote: Does anyone know if CBD oil reduces platelets?
Hal9000 wrote: Melinda, I was looking through old posts. Are you taking B12 and C for the neuropathy? If so, how much B12 are you taking? Would it be correct to say that it is helping a little, and that is why you continue with it, or ?
I'm taking 4K micro grams per day and don't notice any change. Am thinking about double or tripling the dose before giving up. Was looking through Amazon comments on various B12 supplements. I got the impression that B12 helps with some neuropathy but not others. Don't know if that is because of severity or because of type. Something to do with B12 helping with sheathing/covering of the nerve.
I seem to have some sort of nerve pain. But it is unlike anything I've read on the subject.MelA wrote: Hal do you have PN too?
Ok, thanks for that. Sounds like I need to try ALA next.... What has helped it is Alpha Lipoic Acid, studies have found that 600mg a day is the dose for that, my neurologist suggested ALA. When I had knee replacement in February I had to go off all supplements and I could tell a difference when the ALA was stopped. Not saying it has helped immensely or even a lot, but it has helped and with PN any little bit is a big plus! One thing that has help with my PN is acuppuncture...
Oh, that is very different. The head to toe thing is interesting. On doing a little bit of research on Sjogrens, it didn't sound like the nerve pains I am experiencing (see my post to Melinda). Or, have I got it wrong?poseymint wrote: We are off on a natural/social section tangent here- but I will chime in. I also have peripheral neuropathy due to Sjogrens syndrome. Sjogrens/Lupus can go along with ITP . My neurologist has advised B2, not B12 for PN. look it up if interested, there is some research. And Alpha Lipoic Acid 600mg as Mel said.
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Research from JohnsHopkins has shown that in my disorder, primary Sjogrens, there is swelling/inflammation on the dorsal root ganglia, nerves coming off of the spinal cord, and that causes a prickly feeling from head to toe. So its a bit different from feet neuropathy, or diabetic neuropathy but still called PN.
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