Need some answers

I have been dealing with ITP for over a year now, at the start I had levels of 130 so did not really concern me that much, then last fall I hit 65 so was sent to a specialist, who started down the road of possible MSD, Had the bone test done and that was ruled out but what a bad few weeks, Now I have hit 35 and have had a few light nose bleeds and when dealing with the flu this week started to cough up blood. I am thinking well this can't be good. Anyway if anyone has thoughts on this or input.any would be appreciated.

cycle2, are you still seeing a hemotologist? I think you should have a talk with the hemo, talk about your symptoms and your counts and your treatment options. Have you even tried prednisone yet? That's usually the first drug used, and maybe that would be all you need.
Erica

cycle 2, why did your specialist suspect MDS & had a bone marrow test done?
With ITP only your platelets are down right?
How are your other counts?
What is your specialist recommending now that your platelet count is 35?
Based on what I read here most start with prednisone as the 1st option for treatment.
Its best you see the specialist & let him know about your symptoms & your flu.

As Erica said, its a good idea to develop a relationship with your hemotologist so you have a plan in place should you need treatment. Having discussed your options so that you can go home, research and assimilate the impacts, makes it a lot less stressful when the time comes that you have to treat.

Illness impacts all of us differently. For most, the counts will drop during an illness and for some they will raise. For me, it depends if it's baterial or viral, I can go either way. Definitely antibiotics trigger a drop for me. Once you shake the flu, you may bounce back. Or you may need a treatment to bring you up.

I can have nose bleeds at high counts. Mine are triggered by seasonal changes and low humidity and/or allergy stuffiness/dryness. Your's may be related to the flu or they could be symptomatic of the lower counts. See your doctor about coughing up blood just to be sure. It's as likely that it may be that your having a minor nose bleed that's draining into the sinuses and when they drain that's what your experiencing when you coughing up blood. Your sinuses don't drain when your laying prone, which is why you tend to cough a lot when you first get up and they start to break loose. I'll often see blood in the sputum if its been really dry so that I have minor nose bleeds.