Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Pain reliever

More
14 years 6 months ago #14526 by Jacyoga
Pain reliever was created by Jacyoga
Good morning everybody,
I have been visiting this forum since my first abnormal blood test over a year ago.
I have had three more blood tests since then. My platelets have steadily decreased. My last reading was 78. I am in the process of getting Healthy New York Insurance beginning May 1st. Until then, I am using everything I know about mindfulness and meditation to stay calm until I can see a hematologist.
I have been getting distracting sensations in my legs. I'm not sure if the feeling is in my veins, nervous system muscles or lymph, but I would like to take something to take the edge off.
Is Tylenol or Alleve advised?
Thanks to all for keeping this message board going.
Happy Resurrection.

Peace.
Jacqueline Moss
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
14 years 6 months ago #14531 by Sandi
Replied by Sandi on topic Re: Pain reliever
Jacqueline:

Hello. I'm glad you decided to post.

If you've been reading the Forum, then I guess you know that your counts are quite safe. It's possible they will never drop to treatment level and all you'll have to do is monitor. Quite a few people do that and live normal lives.

As for the leg sensations...you probably should see a doctor about that. Is it only at night? That would be RLS. If it's all the time, it could be neuropathy. If that's the case, Aleve or Tylenol probably won't help. There are other scripts that can help.

As for whether or not you can take Aleve or Tylenol, everyone is different. I take 1,000 mg's of Naproxen a day, have for years, and it doesn't affect my counts. They are both on the list of things to avoid, but many people do just fine. Very few people follow the list and most only watch when their counts are really low.
More
14 years 6 months ago #14539 by Jacyoga
Replied by Jacyoga on topic Re: Pain reliever
Thank you Sandy,

Your reply helped assuage my fears.

All best,
Jacqueline
More
14 years 5 months ago #14696 by yum24
Replied by yum24 on topic Re: Pain reliever
hi jacqueline,
strangely, i have this too but i think its b/c of my b vits..i generally have them as pms but lst mnth all thru . i read something abt nocturnal pain( not sure abt spelling) & i did some strecth & strtd takin my vits in noon instead of bed time & it did help to most xtent !

as for aleve&tylenol, my doc adviced me never to take any NSAID'S as she thinks they r the reason for my counts ! i see many take them with no probs ! i was always allergic to tylenol & now can't take aleve !

gud luck !
The following user(s) said Thank You: Jacyoga
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
More
14 years 5 months ago - 14 years 5 months ago #14723 by Angel85
Replied by Angel85 on topic Re: Pain reliever
The issue with your legs could be something called restless leg symdrome.

Restless legs syndrome (RLS) or Wittmaack–Ekbom syndrome is a neurological disorder characterized by an irresistible urge to move one's body to stop uncomfortable or odd sensations.[1] It most commonly affects the legs, but can affect the arms, torso, and even phantom limbs.[2] Moving the affected body part modulates the sensations, providing temporary relief.

RLS sensations can most closely be compared to an itching or tickling in the muscles, like "an itch you can't scratch" or an unpleasant "tickle that won't stop." The sensations typically begin or intensify during quiet wakefulness, such as when relaxing, reading, studying, or trying to sleep.[3] In addition, most individuals with RLS have limb jerking during sleep, which is an objective physiologic marker of the disorder and is associated with sleep disruption.[4] Some controversy surrounds the marketing of drug treatments for RLS. It is a "spectrum" disease with some people experiencing only a minor annoyance and others experiencing major disruption of sleep and significant impairments in quality of life.

Signs and symptomsThe sensations—and the need to move—may return immediately after ceasing movement or at a later time. RLS may start at any age, including childhood, and is a progressive disease for some, while the symptoms may remit in others.[6] In a survey among members of the Restless Legs Syndrome Foundation it was found that up to 45% of patients had their first symptoms before the age of 20 years.[7]

"An urge to move, usually due to uncomfortable sensations that occur primarily in the legs, but occasionally in the arms or elsewhere."[8]
The sensations are unusual and unlike other common sensations. Those with RLS have a hard time describing them, using words like: uncomfortable, "antsy", electrical, creeping, painful, itching, pins and needles, pulling, creepy-crawly, ants inside the legs and numbness. It is sometimes described similar to a limb "falling asleep". The sensation and the urge can occur in any body part; the most cited location is legs, followed by arms. Some people have little or no sensation, yet still have a strong urge to move.
"Motor restlessness, expressed as activity, which relieves the urge to move."[citation needed]
Movement usually brings immediate relief, although temporary and partial. Walking is most common; however, stretching, yoga, biking, or other physical activity may relieve the symptoms. Continuous, fast up-and-down movements of the leg, and/or rapidly moving the legs toward then away from each other, may keep sensations at bay without having to walk. Specific movements may be unique to each person.
"Worsening of symptoms by relaxation."[citation needed]
Sitting or lying down (reading, plane ride, watching TV) can trigger the sensations and urge to move. Severity depends on the severity of the person’s RLS, the degree of restfulness, duration of the inactivity, etc.
"Variability over the course of the day-night cycle, with symptoms worse in the evening and early in the night."[citation needed]
Some experience RLS only at bedtime, while others experience it throughout the day and night. Most sufferers experience the worst symptoms in the evening and the least in the morning.
"Restless legs feel similar to the urge to yawn, situated in the legs or arms." These symptoms of RLS can make sleeping difficult for many patients and a recent poll shows that presence of significant daytime difficulties resulting from this condition. These problems range from being late for work, and missing work or events because of drowsiness. Patients with RLS who responded reported driving while drowsy more than patients without RLS. These daytime difficulties can translate into safety, social and economic issues for the patient and for society.[citation needed

My mum gets this at night and she usually has a warm bath just before going to bed and she says that helps her.
More
14 years 5 months ago #14836 by Jacyoga
Replied by Jacyoga on topic Re: Pain reliever
Lauren,
Thank you for your thoughtful reply.
I appreciate your time and concern.

All best,
Jacqueline
More
14 years 5 months ago #15105 by Dean
Replied by Dean on topic Re: Pain reliever
I have also been told not to take any NSAIDs due to ITP. I have taken ibuprofin a few times but never had counts checked afterwards. I had an ER Dr. prescribe me an NSAID and my Pharmasist said, you can't take this due to ITP. So, I pretty much stay away from NSAIDs which is a nonsteroidal anti-inflammitory drug. RLS affects me at night once and a while, usually a warm shower helps. Tis quite annoying.
Take Care