During my second year of graduate school, about two years ago, I found myself feeling utterly exhausted. I assumed everyone felt the same, but my fatigue was persistent. Despite sleeping over ten hours each night and taking naps throughout the day, I never felt rested. Concerned, my boyfriend encouraged me to seek medical advice, sensing that something was amiss.
After a series of tests, I discovered that my iron levels and platelet count were dangerously low. I was referred to a hematologist/oncologist who informed me that I would need iron infusions and further testing to uncover the cause of my low platelets. A few months later, I received an official diagnosis of Immune Thrombocytopenia (ITP). While some symptoms improved with the infusions, others lingered, marking the beginning of my journey with a chronic illness.
Navigating graduate school while managing a newly diagnosed condition presented significant challenges. However, I gradually adapted to the routine of weekly blood draws and various treatment options, learning to navigate my limitations and my strengths. Initially, I was hesitant to fully embrace my diagnosis, fearing that it would overshadow my identity as a teacher, researcher, and a reader. Over time, I realized that my illness does not define me; it is simply one facet of my life.
Now, as I approach the completion of my PhD, I am leading a fulfilling and vibrant life alongside my chronic illness. I am supported by wonderful friends and family, and I have grown more comfortable with the realities of my condition, including blood draws. Where I once feared that my diagnosis would define me, I now understand that it is just another part of who I am. I've learned to practice self-compassion, prioritize rest, and coexist with ITP. Purple has always been one of my favorite colors, but it carries an even deeper meaning for me now.
Interested in sharing your journey with ITP? Submit your ITP story here. (Full names and contact information will not be shared).