Hi everyone,

I'm new here and I'm struggling to search through the site, there seems to have been mentions of CBD, but I can't seem to find if anyone had any success with this raising their platelet count? 

If anyone has any studies they've read about with CBD interacting with ITP I'd love to read them! 

CBD does increase signals to the region of the brain that regulates your oxygen intake. Research was finalized it was proven and the articles were written in European medical journals.

Cannabis got me off of opioids. I know substitute and use CBD to win off of gabapentin I take 900 mg of gabapentin daily where years ago I used to take 3,600 mg a day.

CBD is a sativa so technically a person with anxiety can get dizzy spells. I am not a Spam. I use Charlotte's Web CBD. I do not have a preference of sativa's I am a pain patient so my preference would be towards the Indica strains. Also the body cannot process more than 20mg of mg of CBD in a 2-hour time period. Too much will make you hyper.stuff is expensive so if you learn how to dose you can save money.

The only benefit of cannabis has been the ability for me to reduce gabapentin as well as navigate those rollercoaster moments.
There's plenty of CBD and beer so go figure.

Cannabeme wrote: Ordered Lowryder Autoflower infused gummy bears for first time. Never used CBD products before. Suffer from MS and muscle spasticity.
Product was delivered within 2 days.
Find that it helps with relaxation to aid sleep if taken late at night and did help as muscle relaxant but wouldn’t use as replacement for muscle relaxants

Cannabeme, have you tried Vitamin D? Here is an article on the connection to MS.
www.mayoclinic.org/diseases-conditions/multiple-sclerosis/expert-answers/vitamin-d-and-ms/faq-20058258

Further. Here is a study suggesting Vitamin D helps reduce one's negative auto-immune reactions to EBV.
"Vitamin D and the anti-viral state"
www.ncbi.nlm.nih.gov/pmc/articles/PMC3308600/
"
... vitamin D modulates the immune response to EBV and suppresses activation of auto-reactive T cells that may contribute to MS pathology.
"
I don't think it is a stretch to think that Vitamin D is helpful in some forms of ITP for the same auto immune reason - the EBV connection. As with MS, perhaps reducing the odds of one's ITP getting worse.

Ordered Lowryder Autoflower infused gummy bears for first time. Never used CBD products before. Suffer from MS and muscle spasticity.
Product was delivered within 2 days.
Find that it helps with relaxation to aid sleep if taken late at night and did help as muscle relaxant but wouldn’t use as replacement for muscle relaxants

poseymint wrote: We are off on a natural/social section tangent here- but I will chime in. I also have peripheral neuropathy due to Sjogrens syndrome. Sjogrens/Lupus can go along with ITP . My neurologist has advised B2, not B12 for PN. look it up if interested, there is some research. And Alpha Lipoic Acid 600mg as Mel said.
...
Research from JohnsHopkins has shown that in my disorder, primary Sjogrens, there is swelling/inflammation on the dorsal root ganglia, nerves coming off of the spinal cord, and that causes a prickly feeling from head to toe. So its a bit different from feet neuropathy, or diabetic neuropathy but still called PN.

Oh, that is very different. The head to toe thing is interesting. On doing a little bit of research on Sjogrens, it didn't sound like the nerve pains I am experiencing (see my post to Melinda). Or, have I got it wrong?

MelA wrote: Hal do you have PN too?

I seem to have some sort of nerve pain. But it is unlike anything I've read on the subject.

I don't have any tingling or numbness sensation at all. Not even a little. What I have would best be described as a single nerve, firing once in pain, somewhere on my body, every so often (~5 minutes). Have no idea when this all started. Likely gradually over time. Most of the time the nerve firing is very mild, almost imperceptible. On other single instances it can be very intense, usually on the hands or feet, especially intense on the feet.

When I recently found out that the Shingles virus 'buds' out the end of one's nerves when it replicates I've thought the two are related. With my immune system aggressively attacking the virus when it exits the nerve ending, enough so as to stimulate it. It was this post on Amazon comments, about 'jolts' of pain, that got me started with B12.
www.amazon.com/gp/customer-reviews/REVYRWVY4RS5L/ref=cm_cr_getr_d_rvw_ttl?ie=UTF8&ASIN=B0013OQGO6

If this Shingles->shock relation is the case (a big if), what I'm looking for is something which calms Shingles into hibernation. Just like with other nerve pains, mine seems to be worse in the evening and non existent in the morning. So there is some physiological influence possible which is able to modify it.

... What has helped it is Alpha Lipoic Acid, studies have found that 600mg a day is the dose for that, my neurologist suggested ALA. When I had knee replacement in February I had to go off all supplements and I could tell a difference when the ALA was stopped. Not saying it has helped immensely or even a lot, but it has helped and with PN any little bit is a big plus! One thing that has help with my PN is acuppuncture...

Ok, thanks for that. Sounds like I need to try ALA next.

We are off on a natural/social section tangent here- but I will chime in. I also have peripheral neuropathy due to Sjogrens syndrome. Sjogrens/Lupus can go along with ITP . My neurologist has advised B2, not B12 for PN. look it up if interested, there is some research. And Alpha Lipoic Acid 600mg as Mel said. He was very excited about that and I tried it for a month. It caused so much foul smelling gas and abdominal distress that it didn't seem healthy for me, but I may try it again. And YES, a big yes to acupuncture. I go to Community Acupuncture which I love, its a group session and only costs $25 per session. It calms down the neuropathy attack, calms me down, my mind gets quiet, problems/stress goes away and I get deeper sleep. But I get so busy that I don't go regularly. Its something you have to work on, not just a one-off session. I also do another kind of energy work that also calms down the nerves, relieves stress and is deeply relaxing. I do that one every day.

Research from JohnsHopkins has shown that in my disorder, primary Sjogrens, there is swelling/inflammation on the dorsal root ganglia, nerves coming off of the spinal cord, and that causes a prickly feeling from head to toe. So its a bit different from feet neuropathy, or diabetic neuropathy but still called PN.

Hal9000 wrote: Melinda, I was looking through old posts. Are you taking B12 and C for the neuropathy? If so, how much B12 are you taking? Would it be correct to say that it is helping a little, and that is why you continue with it, or ?

I'm taking 4K micro grams per day and don't notice any change. Am thinking about double or tripling the dose before giving up. Was looking through Amazon comments on various B12 supplements. I got the impression that B12 helps with some neuropathy but not others. Don't know if that is because of severity or because of type. Something to do with B12 helping with sheathing/covering of the nerve.

Hal do you have PN too? I was taking B12 because it is supposed to help with PN, my level is in range and fine though - I won't say it helped my PN. Sometimes I take it now and sometimes I don't. What has helped it is Alpha Lipoic Acid, studies have found that 600mg a day is the dose for that, my neurologist suggested ALA. When I had knee replacement in February I had to go off all supplements and I could tell a difference when the ALA was stopped. Not saying it has helped immensely or even a lot, but it has helped and with PN any little bit is a big plus! One thing that has help with my PN is acuppuncture.

Take Vit C because I want to Just found this piece at the Mayo Clinic site on C & B12 - you may want to take them at different times:
Vitamin C (ascorbic acid) supplements. Taking vitamin B-12 with vitamin C might reduce the available amount of vitamin B-12 in your body. To avoid this interaction, take vitamin C two or more hours after taking a vitamin B-12 supplement.

For neuropathy do not take extra B6, think that's the one - that can make the pain worse.

Personally I wouldn't increase the B12 until I talked to my doctor - you are already taking more than needed, per the Mayo Clinic site:
The recommended daily amount of vitamin B-12 for adults is 2.4 micrograms.
You are having expensive pee

People do claim CBD Oil helps with their PN pain - some say smoking mj does but I will never put another cigarette to my lips, took me too long to stop smoking real cigarettes [10 years next month I quit!!]. The oil I tried probably wasn't the best, when/if I try again I'll try this good brand grown & made in Colorado - the company is run by brothers and it was started to help a little girl named Charlotte - with this brand I know where it is grown & made and know it isn't from different parts of the world I've never heard of.

Jacyoga wrote: Does anyone know if CBD oil reduces platelets?

Here is a PDSA forum search on the term 'CBD'. From what I recall, it doesn't seem to affect platelet counts, good or bad.
pdsa.org/discussion-group/search.html?query=cbd&searchdate=all&order=inc&childforums=1

Now, if there is some way to alleviate the psychology of 'stress', perhaps it could indirectly be very beneficial. Is CBD oil known to do that?

Melinda, I was looking through old posts. Are you taking B12 and C for the neuropathy? If so, how much B12 are you taking? Would it be correct to say that it is helping a little, and that is why you continue with it, or ?

I'm taking 4K micro grams per day and don't notice any change. Am thinking about double or tripling the dose before giving up. Was looking through Amazon comments on various B12 supplements. I got the impression that B12 helps with some neuropathy but not others. Don't know if that is because of severity or because of type. Something to do with B12 helping with sheathing/covering of the nerve.

This should probably be in the Natural section.

I did try it to see if it would relieve some of my neuropathy pain - it didn't - and there was no difference in my
count while I used it. I stopped using it.

Does anyone know if CBD oil reduces platelets?