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In hospital :(

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #36999 by amberyard

Replied by amberyard on topic In hospital :(

Had last treatment of Rituxan last week with Vincristine. Tapering the Pred down, but my hubby made me a crab boil and a strawberry margarita last night and I have not had alcohol in months. I was a regular drinker, could it be the alcohol??????? I stop drinking cold turkey, it wasn't like I drink liquor more beer and wine.

DeeDee Marie
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12 years 2 weeks ago #37001 by DeeDee Marie

Replied by DeeDee Marie on topic In hospital :(

Amber, I am not a drinker, never have been. But, from what I've read on the ITP fb page, people have mentioned that drinking does lower your platelets. I wouldn't think that you should be drinking while your platelets on in the danger zone.

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37002 by amberyard

Replied by amberyard on topic In hospital :(

It was only 2 margaritas and I have read where alcoholics still drink after diagnosed. Both of my doctor say I can drink but no heavily and I haven't touch the stuff in months. And not going to live life in a bubble.

MommaBee
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12 years 2 weeks ago #37008 by MommaBee

Replied by MommaBee on topic In hospital :(

My hema told me alcohol has been shown to lower platelet production and thus said it was fine to have a drink once in a "safe zone" but not to be drinking any when counts low and receiving active treatment..I was also told to be quite cautious with any alcohol with prednisone. The hema told me that there are not known contraindications between them but both can irritate the GI tract. My pharmacist also independently told me that as well.

The following user(s) said Thank You: amberyard

Slammed
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12 years 2 weeks ago #37010 by Slammed

Replied by Slammed on topic In hospital :(

I try to stay away from alcohol since I noticed that a drink or 2 of wine will cause my count to drop. Also, I think alcohol is a blood thinner...so, please be careful since your count is low at this time.

The following user(s) said Thank You: amberyard

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37011 by amberyard

Replied by amberyard on topic In hospital :(

Yesterday 19k and today 4k and no alcohol... Processed food? had fresh sea food/veg on Sunday night and fish sticks with vegs last night? Will try to do fresh none process food tonight but it is really hard with me/hubby working and his school on Tuesday afternoon/night. I know processed food isn't good for you but with the infusion center and working its hard for me to cook real food...

Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

12 years 2 weeks ago #37013 by Sandi

Replied by Sandi on topic In hospital :(

Amber - I don't think anything you are eating is affecting your counts by the day. Just try to eat as healthy as you can for the short term (salads, etc) and avoid alcohol while counts are down.

The following user(s) said Thank You: amberyard

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37014 by amberyard

Replied by amberyard on topic In hospital :(

Yes I was thinking of a big nice fresh salad for dinner.

DeeDee Marie
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12 years 2 weeks ago #37020 by DeeDee Marie

Replied by DeeDee Marie on topic In hospital :(

Amber, Sandy and the rest on the forum have some really good ideas for you. Good luck on keeping those platelets up!!

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37023 by amberyard

Replied by amberyard on topic In hospital :(

Would love to hear some of the ideas, I am will to eat or try anything....

DeeDee Marie
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12 years 2 weeks ago #37025 by DeeDee Marie

Replied by DeeDee Marie on topic In hospital :(

Amber one is what Sandy said:

quote: "Amber - I don't think anything you are eating is affecting your counts by the day. Just try to eat as healthy as you can for the short term (salads, etc) and avoid alcohol while counts are down."

This here is a very good suggestion.

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37026 by amberyard

Replied by amberyard on topic In hospital :(

DeeDee

yes no alcohol (check) eat more healthy (check),

does anyone have any info on wheatgrass?

Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

12 years 2 weeks ago - 12 years 2 weeks ago #37028 by Sandi

Replied by Sandi on topic In hospital :(

Any ideas I've had have already been said. Not sure how good they are....

One thing diet-wise that may help is going gluten-free. It's time consuming, difficult and expensive, but no side effects and it's very healthy. There are many stories of people with autoimmune disorders improving after giving up gluten. I'd go so far as to say it's probably the diet change that helps people the most. Juicing also seems to be getting a lot of attention as far as helping autoimmune disorders.

I've done both and it's a tough commitment. But when you're desperate enough, you make it work. It makes sense and does not destroy the body like meds do; it repairs the body.

Slammed
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12 years 2 weeks ago #37030 by Slammed

Replied by Slammed on topic In hospital :(

amberyard wrote: DeeDee

yes no alcohol (check) eat more healthy (check),

does anyone have any info on wheatgrass?

I've been drinking fresh wheatgrass juice from Farmer's market and making my own payapa leaf extract for 3 years now...I do not see any differences in my count...but I still take them since they are healthy for you.

It never hurts to try....

The following user(s) said Thank You: amberyard

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37031 by amberyard

Replied by amberyard on topic In hospital :(

Sandi

I am looking into getting a juicer, I've read that wheat grass is great for platelets also.

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37110 by amberyard

Replied by amberyard on topic In hospital :(

15k today and 2k yesterday. Got my last vincristine today also re check counts in am. Taper Pred since it is not working.

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37129 by amberyard

Replied by amberyard on topic In hospital :(

2k today they always drop for a couple of days after vincristine. Pulled old iv since was sore and red from the vincristine yesterday. Called iv team to put new one in and now just waiting on platelets.

Jonsdottir
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12 years 2 weeks ago #37130 by Jonsdottir

Replied by Jonsdottir on topic In hospital :(

Hopefully your counts will go up soon and continue to go up! Quite a rollercoster you have experienced.

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 2 weeks ago #37156 by amberyard

Replied by amberyard on topic In hospital :(

3k yesterday and 2 k today but got a juicier.

Slammed
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12 years 2 weeks ago #37163 by Slammed

Replied by Slammed on topic In hospital :(

Amber,

Happy juicing! I bet you went a bit crazy with buying all kinds of fruits and veggies at the grocery store!

Hopefully, juicing will give you more energy and PLATELETS!

Keep up your spirits...tomorrow is a new week.

The following user(s) said Thank You: amberyard

sem40
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12 years 1 week ago #37167 by sem40

Replied by sem40 on topic In hospital :(

I hope you enjoy the new juicer. My favorite recipe is beets, carrots and orange juice. I always see that recipe described as a blood cleanser. It seems to get rid of my bruises so I like it. Plus it tastes great.

Here's some more recipes.
juicerecipes.com/health/benefits/juicing-to-cleanse-blood/

Just be careful of ingredients like ginger, that's a blood thinner so you'd probably want to avoid any blood thinning ingredients while your counts are so low.

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 1 week ago #37168 by amberyard

Replied by amberyard on topic In hospital :(

7k today

Sem40

I don't have any ginger but I did think about it being a blood thinner. I do need to go get more apples. Right now I do 1 beet, 4 carrots, 2 stalks of celery, 4-6 leafs kale, just grab the cilantro, 1 apple. Had one last night and this morning will have another tonight.

sem40
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12 years 1 week ago #37174 by sem40

Replied by sem40 on topic In hospital :(

That sounds great. I also like to make kale lemonade sometimes with kale, lemons and oranges. Have fun with the new juicer!

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 1 week ago #37193 by amberyard

Replied by amberyard on topic In hospital :(

19k today and still juicing....

jeffrey71
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12 years 1 week ago #37212 by jeffrey71

Replied by jeffrey71 on topic In hospital :(

Amber!

Just wanted you to know that I was thinking of you. Glad your counts are improving. Is there a juicer receipt for Tequilla? Just wondering...... :huh:

Jeffrey

DeeDee Marie
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12 years 1 week ago #37213 by DeeDee Marie

Replied by DeeDee Marie on topic In hospital :(

Amber,

Glad your counts are improving, too. That juicing must be helping!

And, Jeffrey--you are funny

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 1 week ago #37224 by amberyard

Replied by amberyard on topic In hospital :(

well yesterday was 5k but better than it has been. I ran out of kale and beets the night before so no beets/kale the night before. I had them that morning and last night and this morning, I have to go get some more my store is out.

and Jeffrey no Tequilla just the sound of it makes my stomach turn....

jeffrey71
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12 years 1 week ago #37247 by jeffrey71

Replied by jeffrey71 on topic In hospital :(

Hang tough Amber!

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 1 week ago #37255 by amberyard

Replied by amberyard on topic In hospital :(

8k yesterday and going in again this morning to find out where I am today... About to start drinking my juice....

amberyard
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Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC

12 years 1 week ago #37260 by amberyard

Replied by amberyard on topic In hospital :(

8K again today but no platelets, there is a shortage of platelets. Then got a call after I left to go to work that they will have them late morning. I said (i'm not bleeding or bruising and have to come back at 8am for re check of counts, I'll be fine and want to give my body a break). Then got another call about an hour ago from doctors office saying if I start bleeding to go to ER. (well the infusion center is open until 5, I'll go there since the infusion lady said I can just walk in at any point today to get them). Oh and the doctors office said no shaving?? I'm not stupid and been shaving for over 20 years....???

Either way this is where I am at today.

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