Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

In hospital :(

More
11 years 11 months ago #37686 by openhanded
Replied by openhanded on topic In hospital :(
The lack transfusing platelets seems to be doing you some good. I'm really happy that you're having a positive trend now as opposed to being stuck in the single digits.
Diagnosed: August 2013, lowest count 2k.
Treatments: IVIG, Prednisone, transfusions.
Current Count: 233k, 12/23/2013.
Currently: Watching/waiting.
The following user(s) said Thank You: eklein
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
11 years 11 months ago #37691 by Sandi
Replied by Sandi on topic In hospital :(

openhanded wrote: The lack transfusing platelets seems to be doing you some good. I'm really happy that you're having a positive trend now as opposed to being stuck in the single digits.


Agreed. ;)
More
11 years 11 months ago #37702 by jeffrey71
Replied by jeffrey71 on topic In hospital :(

amberyard wrote: weekend was good since I didn't have to give up any blood and counts this morning 27K... I have a doctor re check on Thursday with CBC, hope they keep going up....


Amber!

Ain't you doing well???? :P You will be ready to do a triathlon with me soon! Keep going! I am very happy for you!

Jeffrey
  • dru
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
More
11 years 11 months ago #37714 by dru
Replied by dru on topic In hospital :(
So glad you are doing better Amber :).
More
11 years 11 months ago #37716 by Katsim
Replied by Katsim on topic In hospital :(
Fab counts amber! Fingers crossed they keep going up & up xx
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".
More
11 years 11 months ago #37726 by DeeDee Marie
Replied by DeeDee Marie on topic In hospital :(
Amber, This is great news!! Maybe a little rest did you good!
The following user(s) said Thank You: amberyard
More
11 years 11 months ago #37824 by Jonsdottir
Replied by Jonsdottir on topic In hospital :(
Amber, how are you doing?
  • amberyard
  • Topic Author
  • Offline
  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
More
11 years 11 months ago #37832 by amberyard
Replied by amberyard on topic In hospital :(
Man I forgot to tell everyone 53k on 11/7/13 and will get re count on 11/14/13
The following user(s) said Thank You: Jonsdottir
More
11 years 11 months ago #37838 by jeffrey71
Replied by jeffrey71 on topic In hospital :(

amberyard wrote: Man I forgot to tell everyone 53k on 11/7/13 and will get re count on 11/14/13


Well! Aren't you special! B)

You deserve it! I hope it continues!

Jeffrey
The following user(s) said Thank You: amberyard
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
11 years 11 months ago #37849 by Sandi
Replied by Sandi on topic In hospital :(
That's great! Glad you're done with those transfusions.
The following user(s) said Thank You: amberyard
More
11 years 11 months ago #37857 by DeeDee Marie
Replied by DeeDee Marie on topic In hospital :(
Amber,
This is really great!! It seems like some of your treatments may be starting to work! And, it's good that you don't have to have those transfusions.

Take care and rest up!

Dee Dee
More
11 years 11 months ago #37863 by Jonsdottir
Replied by Jonsdottir on topic In hospital :(
Great news :)
More
11 years 11 months ago #37866 by Winnifred
Replied by Winnifred on topic In hospital :(
Saw the numbers that is great news! Looking forward to hearing more great numbers!
More
11 years 11 months ago #37899 by Kristine
Replied by Kristine on topic In hospital :(
Thank goodness your counts are rising!
More
11 years 11 months ago #37904 by Katsim
Replied by Katsim on topic In hospital :(
Fx they keep going up.... Up..... Up! :D
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".
  • amberyard
  • Topic Author
  • Offline
  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
More
11 years 11 months ago #37921 by amberyard
Replied by amberyard on topic In hospital :(
37k today
More
11 years 11 months ago #37925 by Katsim
Replied by Katsim on topic In hospital :(
Still a good number! :-)
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".
More
11 years 11 months ago #37928 by Kristine
Replied by Kristine on topic In hospital :(
Hang in there!
More
11 years 11 months ago #38026 by belydncrck01
Replied by belydncrck01 on topic In hospital :(
Do your happy dance!
More
11 years 11 months ago #38028 by yogesh
Replied by yogesh on topic In hospital :(
Hi, I've gone through with all your updates. Hope you are feeling fine now. My wife is also hospitalized from last 7 days count are fluctuatings between 10k to 8k.
Day before yesterday she had her first dose of rituxi, next morning count was 20k but again count relapsed to 10k today morning. Doctor asked to wait and watch, any idea what is the response time of rituxi after first infusion.

Thanks, Yogesh
More
11 years 11 months ago #38030 by Kristine
Replied by Kristine on topic In hospital :(
I've heard between 4 - 12 weeks for Rituxan to kick in. Good luck!!
More
11 years 11 months ago #38042 by DeeDee Marie
Replied by DeeDee Marie on topic In hospital :(
Amber,

Enjoy you holiday. I'm so glad that you are doing better!! Will pray that you will continue
to have higher platelets!

Dee Dee
  • amberyard
  • Topic Author
  • Offline
  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
More
11 years 11 months ago #38061 by amberyard
Replied by amberyard on topic In hospital :(
10K yesterday have to go get re check tomorrow morning and he said if I have any symptoms I have to go to ER to be admitted for spleen removal. I have an appointment with doctor on Tuesday morning 11/26/13 and if my numbers don't change I'm sure at that point he will admit me for surgery.
More
11 years 11 months ago #38063 by Katsim
Replied by Katsim on topic In hospital :(
Oh no! Your numbers seemed to be doing so well. Really sorry to hear they're down again :-(

How do you feel about surgery? I saw one of your older posts questioning splenectomy & whether it might or might no be for you.

I don't know what else to say hun! You've had such a hard time lately - you don't deserve this x
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".
  • amberyard
  • Topic Author
  • Offline
  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
More
11 years 11 months ago #38065 by amberyard
Replied by amberyard on topic In hospital :(
Doctors office just called back and yes I am low on iron. But the doctor will go over things on Tuesday with me (like iron transfusion). But I am still getting CBC in morning, who knows he made have them do one tomorrow. ??
More
11 years 11 months ago #38067 by Rob16
Replied by Rob16 on topic In hospital :(
Amber, I got teary-eyed over your bad news. You have been through so much and struggled so hard, and we were all so hopeful for you that you had finally found the right answer. There are still lots of options, including splenectomy, so you will need to stay focused on making the next best choice for you, and not let it get you down. We are all in your corner!
  • amberyard
  • Topic Author
  • Offline
  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
More
11 years 11 months ago #38073 by amberyard
Replied by amberyard on topic In hospital :(
Rob

I just want to get back to a normal life. At least now I know why I am always cold and tired. Now I'm set up for iron infusions, 12/5 & 12/12, but still don't know what the doctor is going to say next week. I was thinking since he wants to see me next week and we already talked about that he wants to be working on the day he admits me that it will happen next week (spleen removal). But since I am set up for iron in December don't know now...????
More
11 years 11 months ago #38085 by jeffrey71
Replied by jeffrey71 on topic In hospital :(
Amber,

If you would like I could come and scare the lab techs and we could what ever counts you would like! I am so sorry that you seem to be back on the roller coaster again. I am sorry. BUT! I am optimistic that all will be fine!

You go and relax, do not stress on this. You have been lower on counts and you have been through much. I dont want you to be adding stress to the mess. (I kind of liked that last phrase, kind of catchy!)

I so want you to get good numbers! Think Positive! I have 42k I can e-mail you 21k if you like! B)
I am thinking of you and wishing you the best.

Stay in touch!

Jeffrey
The following user(s) said Thank You: amberyard
  • amberyard
  • Topic Author
  • Offline
  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
More
11 years 11 months ago #38087 by amberyard
Replied by amberyard on topic In hospital
Stress is here now the IRS is starting inn......!!!!!
More
11 years 11 months ago #38094 by Kristine
Replied by Kristine on topic In hospital :(
I'm so sorry you are going to have to have surgery. I really, really, really hope it works for you and works forever!! You've been through so much!
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use