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TOPIC: Does Stress effect your ITP

Does Stress effect your ITP 5 years 2 months ago #40892

  • GhostRider
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Hey all,

This is my first post so a little about myself.

I was diagnosed with ITP when I was 17 after a 2nd Knee Op, what should of been a day job turned into 4 days due to bleeding.

Since the age 17 to 32 I have never had to have any treatment for my ITP.

It has got as low as 20 but it usually improved after a few weeks.

However I had my first real problem with ITP came about after 6 months of having a undiagnosed LRTI (lower respiratory tract infection(my GP's kept insisting it was a virus even thou I had lost nearly 2 inches of my waste due to not being able to keep any food down from the coughing) and my wife having a terrible 2nd birth (she needed a emergency C-Section followed by an emergency hysterectomy losing 8 units of blood in the process)

I suspected that my Platelet had dropped as I was getting some quite sever bruising so I went to my GP to get a blood test done.

About 10pm that night the out of hours GP called me and told me to get to hospital asap as my count was 3.

I was placed on 85mg of Pred and after a couple of days I was given a 5 days course of IVIg.

My Specialist also did a full CT Scan and Chest X-Rays as well as a host of other blood test to rule anything else out.

Lucky enough after a couple of weeks my count stabilised and everything else checked out fine.

My Specialist said that she suspected that due to the huge amount stress and in combination with the infection this had contributed to the my platelets dropping so low.

2 1/2 years later after having no other issues with my count I started to get pains around my kidney area last October.

These pains started to progress all around my chest/back/arms/neck. I called it a magical ball of pain as it would come and go at random, hitting specific parts at different strengths for different time.

First Visit to my GP - It could be Shingles???

Waited a few weeks, nothing doing, pain still there

Second Visit to GP - It could be Kidney infection..

Explained that I was having no problems in that area at all and it was effecting the areas I mentioned. See took notice of what happened a few years back, insisted it was most likely a kidney infection and told be to get my bloods done and come back in a week.

Before I did that the pain got so bad I honestly though I was having a Heart Attack. Went to A&E and I have to say their were amazing and everything checked out fine. Doctor advised that it was mostly a skeletal or muscle issue.

Third Visit to GP - Told them what happened, they replied nothing they could do until the pain got worse !!!!

Couple of weeks later went back

Forth Visit to GP - Stared from the beginning, was told it was pulled muscle.

Went back again after a few weeks.

Fifth Visit to the GP - It was March and this time was told it could be fibromyalgia. At this point I was getting very upset. I had knew it was not fibromyalgia. I insisted it wasn't however I could tell that she did not want to listen. She wanted to run blood test to rule other things out. So we did.

Sixth Visit to the GP Results came back all negative which reinforced her view that was fibromyalgia. I will admit that byu this time I was convinced that I had some kind of cancer, I don't know why as I am not the type of person who thinks things like that but after having these pains since the October I couldn't think of what else it could of been and the constant random crap I was getting from the GP's was not helping.

Now lucky for me I had my usual appointment with my Physio for my knee a few weeks after this. She took one look at me and how I was holding myself and immediately wanted to look at my back.

It transpired that the reason for my pain was because I had a posterior joint stuck in my thoracic spine.

By this point thou I was beyond stressed out. I had been suffering from this pain since October, I was had convinced myself that it was something very serious, essentially I was a wreck both physically and mentally.

At this point I knew that my Platelets had dropped so my Physio was unable to give the full treatment that she needed although she was able to relieve some of the pain.

Knowing my Platelets had dropped I got a blood test and sure enough they were at 11.

Waiting another week, did a another test and they were at 10.

Not wanting to see my GP again, I went above their heads and called haematology ward at my local hospital.

After a brief chat they asked my to come in the next day so they could give me a quick check up. I went in, they did the check up and another blood test and it came back at 5 so they referred me to the specialist.

Again she talked about Stress having a major impact on my Platelets. She seems to believe in my case that being under a prolonged period of stress (many months) effects me.

I have been on 80mg for 3 days now and judging from my body, no bleeding, no new bruises and the fact that a lot of worry has been lifted that I am improving.

I am wondering if anybody else has ever noticed if a prolong period of Stress (months) effects them?

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Does Stress effect your ITP 5 years 2 months ago #40894

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I believe that stress can play a huge part in overall health. Stress can exacerbate other autoimmune disorders, so why not ITP as well? It could very well cause the immune system to go into overdrive and produce anti-platelet antibodies.

I have had drops when I have had no stress and have had counts stay up while under tremendous stress, so I can't say it happens every time a person is stressed. I was diagnosed though at a time when I had been stressed to the max for months, so I believe it played a part.

In today's world, there isn't much we can do to prevent stress. It will find us no matter what we do. Learning to manage it is the key.
The following user(s) said Thank You: GhostRider

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Does Stress effect your ITP 5 years 2 months ago #40921

  • JazzenJanzen
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Sandi's comment for the win.

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Does Stress effect your ITP 5 years 2 months ago #40932

  • ecarlon
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I think that stress was the major cause of my itp.
I have developed it one year ago after a period of terrible stress.
Carl
Aug. 2013 - 2K (steroids 3 months)
Jan. 2014 - 100K
Oct. 2014 - 20K (watchful waiting)
May 2015 - 35K (watchful waiting)

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Does Stress effect your ITP 5 years 2 months ago #40936

  • sem40
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I got laid off recently and a few days after being given the news I had a regularly scheduled check up at the dr.'s. I was not surprised to find out my counts dropped drastically immediately after receiving the news. I've definitely been trying to reorganize my priorities since being diagnosed to eliminate as many stressors as possible. I tolerated a lot more needless stress than I had to when it wasn't an immediate assault on my health. In a way this forced self care has been beneficial.

It's worrisome though that stress can have such an immediate and negative impact on my health given that stressful events aren't really something you can typically plan for. I was watching a TED talk recently that discussed how peoples attitudes toward stress can have a major impact on how it effects a persons health. I don't really know how that works when a chronic health condition has a tendency to flare under stressful conditions but the video was helpful for me to reassess how I was sort of stressing myself about the prospect of stress.

www.ted.com/talks/kelly_mcgonigal_how_to_make_stress_your_friend

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Does Stress effect your ITP 5 years 2 months ago #40938

  • eklein
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I'm sure that stress could affect itp, but in my case I'm pretty sure that stress alone does not affect my counts. In others, stress alone might affect counts.

One thing to consider, does stress affect your eating or other behaviors that could in turn affect your itp? It might be indirectly related to stress. I know when I'm stressed I tend to take less good care of myself in general -
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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Does Stress effect your ITP 5 years 2 months ago #40943

  • weirdjack
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Stress affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP......

Reminds me of George Jetson's famous line, "Jane! Stop this crazy thing!"


.

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Does Stress effect your ITP 5 years 2 months ago #40946

  • GhostRider
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weirdjack wrote: Stress affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP, which causes me stress, which affects my ITP......

Reminds me of George Jetson's famous line, "Jane! Stop this crazy thing!"


.


This made me laugh.

I so know what you mean

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Does Stress effect your ITP 5 years 2 months ago #40998

  • DeeDee Marie
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Exactly how I feel!!

Stress is something that we cannot always control--no matter how hard we try!! And, it comes in all different forms just as GostRider mentioned: Life, pain, health, food--many different sources!

Dee Dee

Right now my is do to pain--just trying to work through it!

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Does Stress effect your ITP 5 years 2 months ago #41000

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Well after seeing my Hemo today I happy to say that my count has gone from 5 to 19 with just using 80mg of Preds

She wants to see how I go another week and if all is good she will start to lower the dose :)

Also have to add that thanks to this site my stress levels have gone down considerably

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Does Stress effect your ITP 5 years 2 months ago #41002

  • DeeDee Marie
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This is very good. You are getting a good reaction from Prednisone.

Good luck to you and hope those platelets stay up high!

Dee Dee

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Does Stress effect your ITP 5 years 2 months ago #41008

  • ashybobashy
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Yes, it does seem to affect it however when I was first diagnosed at 13, I had no stress in my life. I got a cold which as it eased and I was getting better I developed a bruise. I ignored it...cos I felt fine. A week later I developed petachia which led me to call the doctor. My point is, I mentally wasn't under stress but my body was out of no fault of my own. In fact I was getting better then they dropped.

Funnily enough I've noticed a pattern. Every couple of years I got a bad flu. I'll have it a week, start to get better...then my platelets drop. Bizarre how I'm just about recovered they go down. So, mental stress can aggravate. It but not the cause.

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Does Stress effect your ITP 5 years 2 months ago #41013

  • Ann
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Viruses and bacterial infections are known to drop platelets for some people so it's not really odd. The timing is also not unusual as it usually happens some time after the infection and not straight away.

Stress doesn't affect my counts. I've been under awful stress at work with good counts and then feeling wonderfully stress-free and had counts plummet. So no connection for me.

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Does Stress effect your ITP 5 years 2 months ago #41028

  • DeeDee Marie
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I do think everyone is different and each person has a different cause. For me both physical and mental stress plays a part in my platelets falling. It may not happen at that moment; it may be six months later. I also get other problems from stress and fatigue. One is Cellulitis (which is a staff infection and can be very dangerous). It can lead very quickly to blood poisoning. I just recently had a case and was able to catch it in time. I've been getting this for the last 30 years and it always comes along with some kind of stress.

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Does Stress effect your ITP 5 years 2 months ago #41036

  • Melinda
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Like Ann stress doesn't affect my count - but stress can cause other problems. I did stress when my little remission went by the wayside thanks to a tetanus booster, wasn't about to go on a high dose of prednisone and look like the Pillsbury Dough Boy for our son's wedding - that stress brought on shingles.

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