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Groucho, I suspect doctors and researchers are keenly aware of what is current in the ITP world. Google/yahoo searches makes keeping up with piers easy. My treatments table comes up in search results just like everything else. At the recent PDSA conference there was a brief mention of someone working on optimizing treatments but didn't go into detail about what that meant. At the time I wondered if someone is doing similar research to what I have done.GrouchoMarx wrote: Fascinating. Did you get any feedback from doctors or researchers?
According to the table, I am row 1 since corticoids push my count always to 3 digits. However 13 days with 50mg promacta didn't do anything. Tomorrow I will have a count again without a cold this time.
I agree Groucho. It does seem odd to not have increased counts on 75mg with a starting count as high as yours. What might be the problem? That would be speculation. But why go down that path until you've actually been on the drug longer?GrouchoMarx wrote: Thank you all for the encouragement. The point is that have been very often over 30K without a treatment. If promacta isn't doing much more or simply increasing the count few Ks isn't worth the collateral effects. Anyways as suggested I need to give it time. Lets see if I manage to get steady over 50k or 60k in the next few weeks. That would be a difference that would make me consider promacta a plus.
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