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10mg of pred

CHELS04
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11 years 2 months ago #45083 by CHELS04

10mg of pred was created by CHELS04

had apt today and I get to taper down to 10mg for a week then stop. what is everyones experience with 10mg for a week an then stopping? I started on 60mg in September. my count this week was 183. just wondered what to expect as I read people sometimes get to 10 and then it's really bad?

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

11 years 2 months ago #45084 by Sandi

Replied by Sandi on topic 10mg of pred

Well....it would probably be better to drop by 5's at this point. This is the hardest time during tapering. Stopping after 10 mg's could cause some withdrawal symptoms to be worse that way. See how you do in the next few days after going down to 10. If you're getting hit with withdrawal, call your doctor and ask for a different taper.

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CHELS04
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11 years 2 months ago #45085 by CHELS04

Replied by CHELS04 on topic 10mg of pred

Thank you sandi, I was wondering cause I haven't seen many people on here go from 20 to 10 then stop completely. I have had some withdrawals already, really tired, and shakey very on edge I figured it was from the taper. I know everyone is different but is there a good chance I will drop going from 10 to 0 in a week?

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

11 years 2 months ago - 11 years 2 months ago #45087 by Sandi

Replied by Sandi on topic 10mg of pred

It's possible that you could drop. A slower taper would be better for both platelets and withdrawal. Going to zero is always the toughest and doing it from 10 mg's could be hard, especially after dropping from 10 mg's. I don't get why doctor's do that to people. I guess because they have never had to go through it themselves.

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CHELS04
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11 years 2 months ago #45089 by CHELS04

Replied by CHELS04 on topic 10mg of pred

What are the odds of getting remission out of one treatment of pred? is it a good chance?

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Melinda

11 years 2 months ago #45090 by Melinda

Replied by Melinda on topic 10mg of pred

My understanding is our body produces on its own less than 10mg of "prednisone" daily - so if one has been taking more than that the body quits making it.

Someone please correct me if I have that incorrect!!

My question would be if the production by the body has been suppressed what triggers the body to start making it again?

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CHELS04
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11 years 2 months ago #45091 by CHELS04

Replied by CHELS04 on topic 10mg of pred

thank Melinda that is what I have read as well. so I am wondering what kind of problems I'm gonna have over the next week and week after with no pred at all. I am also scheduled for a colonoscopy on dec.8th and the surgeon will only do it if my platelets are at least 100. I am hoping they will check that before surgery as he was just going off of my platelet count this week which was 183. the highest I got out of the pred was 196 and that was after a week of 60mg. I know that are good numbers but I would have thought I would have been well over 200

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Melinda

11 years 2 months ago #45092 by Melinda

Replied by Melinda on topic 10mg of pred

I recently had surgery and they went off the week old platelet count which was 107k, not long before that count it came back at 87k.

Has the doctor said when you need a count done before the colonoscopy?

My thought is if one has been on prednisone for a long period and stops it at a higher dose than what the body makes what kicks the body into start making it again? That is what I would want to ask my doctor [but then I did a very slow taper since I was on it a few years].

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

11 years 2 months ago #45093 by Sandi

Replied by Sandi on topic 10mg of pred

The body produces about 7.5 mg's of cortisol per day, so when you taper, going down slowly from 10 mg's will give the adrenals more time to start back up on their own. It's not as much of a shock to the body.

Remissions do happen from one round. Not often, but it does. Sometimes the counts stay up for months, so there's that.

The following user(s) said Thank You: Melinda

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Melinda

11 years 2 months ago - 11 years 2 months ago #45096 by Melinda

Replied by Melinda on topic 10mg of pred

Thanks Sandi - it's been a while and I thought the amount our bodies made was 7.5 but didn't want to say so since I was having a brain-belch.

Could there be a chance that the body might not kick in and start producing its own cortisol if the amount of prednisone stopped is more than the body makes?

I was on prednisone one time and went into a "remission" - but it was a long time on pred

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

11 years 2 months ago #45098 by Sandi

Replied by Sandi on topic 10mg of pred

Yeah, an adrenal crisis can occur, but probably not if a person has only used Prednisone for a few months and tapered down. If you went two months on a high dose and just stopped, adrenal crisis could occur which can be fatal. When you taper like Chels is, you might end up with temporary adrenal fatigue. We've all been there anyway, even with a slow taper, but it can be a bit harder with a big drop like that. Some people do fine, but others feel horrible for weeks or months.

The following user(s) said Thank You: Melinda

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CHELS04
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11 years 2 months ago #45107 by CHELS04

Replied by CHELS04 on topic 10mg of pred

Melinda, he was just going to go off of the platelet count from this week but by the time I have surgery I will be completely off the pred and I'm guessing they will want to do another platelet count before so should I call his office and ask?

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CHELS04
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11 years 2 months ago #45108 by CHELS04

Replied by CHELS04 on topic 10mg of pred

Sandi,

what should I watch for from going from 10mg to 0 in a week? will this be something I notice right away or once the pred wears completely off

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

11 years 2 months ago #45116 by Sandi

Replied by Sandi on topic 10mg of pred

Chels:

It's usually something that you'd notice right away, like a few days. With withdrawal, some people notice extreme fatigue, muscle weakness (jello legs), joint and muscle pain, etc. I remember when I went through it thinking that it was even an effort to lay down in bed. How ridiculous is that? I was still working and sitting at my desk all day was hard. That lasted about six weeks.

Everyone is different though, and many people do not get hit that bad. I also noticed that each time I would get off of a round of Prednisone, it would be harder than the last time. You'll know if it starts to happen....your body will tell you.

When did you say the surgery was? Dec 2nd? That's like 2-3 weeks away. I'd get another count. If it's only a week in between, that's a bit different, but a few weeks? Nah. (I don't see the surgery date in this thread. It's only showing me the last 6 posts).

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CHELS04
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11 years 2 months ago #45158 by CHELS04

Replied by CHELS04 on topic 10mg of pred

Thanks sandi!!! My surgery is dec.8. An I wont have another apt with my hemo til dec.11. I am always tired anyway lol that is my biggest issue I feel like I could sleep for days an prolly would if I didnt have kids to get to school an a job lol.

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Melinda

11 years 2 months ago - 11 years 2 months ago #45159 by Melinda

Replied by Melinda on topic 10mg of pred

CHELS04 wrote: but by the time I have surgery I will be completely off the pred and I'm guessing they will want to do another platelet count before so should I call his office and ask?

I would call and ask - I just like them to know what is going on. When I had my hand surgery 87k was fine with hematologist & surgeon but I was told it was up to the anesthesiologist.

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

11 years 2 months ago #45161 by Sandi

Replied by Sandi on topic 10mg of pred

Chels:

I get the 'tired' with having kids and a job - been there. Prednisone fatigue is different....you actually shake from being so weak and exhausted. If it happens, you'll know!

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CHELS04
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11 years 2 months ago #45164 by CHELS04

Replied by CHELS04 on topic 10mg of pred

Thank you guys so much. I am gonna call the surgeon today an ask if they want me to have one before the surgery or not.

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Kyndig
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11 years 2 months ago #45179 by Kyndig

Replied by Kyndig on topic 10mg of pred

Tapered from 120 to 10 ( big guy)... The taper sucks. Your body normally produces about 7.5 mg of pred-like hormones a day. Generally each transition was 2-3 days of fatigue and joint pain. Sandi is right on it hurting just to lay down. Below 10mg my platlets crashed... So during other treatment options I've been on 10 mg for last 3 months. Not ideal, but better than 120

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CHELS04
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11 years 2 months ago #45186 by CHELS04

Replied by CHELS04 on topic 10mg of pred

ugh don't tell me that!!! I was wondering how I would do I have read most people crash after ten and I don't wanna be on these things anymore Thursday is my last day!!!! I'm gonna have a party haha. I didn't work yesterday and slept most of the day ugh and I feel like I haven't slept at all!

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Melinda

11 years 2 months ago #45193 by Melinda

Replied by Melinda on topic 10mg of pred

Chels I didn't crash after going down from 10mg & I had no problems [believe me, the problems I had were while I was on it as my family can tell you] - but I did a very slow taper, slower than my hematologist told me to do. I had no bone pain, no hurting laying down, my count then stayed between 85k & 125k for 9 1/2 years. You are you, they are they - you may not do what they do. Think positive and go from there!!

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

11 years 2 months ago #45197 by Sandi

Replied by Sandi on topic 10mg of pred

After my second round of Prednisone, I didn't crash. Counts stayed up for two or three years. Some people do get lucky and counts can stay up for weeks, months or years.

Just to clarify, I didn't really hurt when I laid down....I was exhausted laying down. I just remember thinking that laying in bed was even an effort...weird.

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ananta
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11 years 2 months ago #45208 by ananta

Replied by ananta on topic 10mg of pred

My Dr is recommending a taper that goes from 10 mg a day to 10 mg every other day for a week.

When I get there.

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CHELS04
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11 years 2 months ago #45215 by CHELS04

Replied by CHELS04 on topic 10mg of pred

thank everyone!!! tomorrow is my last day on pred!!! so we will see what happens!

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poseymint
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11 years 2 months ago #45224 by poseymint

Replied by poseymint on topic 10mg of pred

I hope it goes well for you Chels! But also wanted to chime in I agree with what others have said, going from 10mg to 0 is not the best idea. For the reasons already mentioned, there is more of a tendency for platelets to crash than if you tapered more slowly and also the risk of withdrawal symptoms.

I've been on and off prednisone- my symptoms of tapering too fast are body aches- feels like getting the flu, tired need a nap feeling, weak muscles, joint pain, feeling low emotionally.

I like to go every other day when I taper. Such as 10 then 5 every other day, then 5mg only for a few days or week. Then 5 to 0 every other day. (Except in my case I've been on it too long to taper even that fast- I go down by .5mg)

You may be okay since you haven't been on it so long. Hope it goes smoothly! good luck

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CHELS04
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11 years 2 months ago #45254 by CHELS04

Replied by CHELS04 on topic 10mg of pred

Well yesterday was my last pill an today my entire body hurts. Not sure if its from withdrawal or not but it hurts just laying in couch

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dru
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I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.

11 years 2 months ago #45257 by dru

Replied by dru on topic 10mg of pred

That is what prednisone withdrawal can feel like. That is why most doctors do a slower taper...like 10mg alternated with 5 for a week and then 5 and 0. I usually do 1mg for the last week.

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CHELS04
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11 years 2 months ago #45269 by CHELS04

Replied by CHELS04 on topic 10mg of pred

I was wondering y he didn't. I am not sure y he went to 10mg for 7 days and then nothing. I haven't felt this bad in a long time. I have had a headache for 4days ugh how long will this last? And will my platelets crash?

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

11 years 2 months ago #45272 by Sandi

Replied by Sandi on topic 10mg of pred

Chels:

It can last for a few weeks. Do you have any pills left?

I can't tell you if counts will crash or not. That doesn't have anything to do with how you feel with the withdrawal.

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CHELS04
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11 years 2 months ago #45283 by CHELS04

Replied by CHELS04 on topic 10mg of pred

No sandi I don't. He gave me a rx for the 10mg for 7 days and that was it. I think the fatigue is what is kicking my but. I mean I don't even wanna get out of bed. An feel like I could fall asleep sitting in my office. I find stuff to do to walk around so I don't fall asleep, lol

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10mg of pred

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.