Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Splenectomy

More
15 years 5 months ago #3041 by FranL
Replied by FranL on topic Re:Splenectomy
Will get the platelets counted again on Monday. I'm taking a tiny children's aspirin (80 mg) in the morning and at bed time for peace of mind really. My hemotologist thought I would be just fine...he said if they were 1000 or more he would have been concerned.

Also figured out my pain med weaning issues. Talked to the pharmacist and she suggested 1/2 percocet every four hours and Alieve every 6 -8 hours as needed. Finally seem to be feeling better without the crashes.
More
15 years 5 months ago #3058 by tortie
Replied by tortie on topic Re:Splenectomy
It's a lot to get used to, new counts, the healing, etc. Wow, 600, I think you're off to a great start, they'll probably settle down soon. I think the BM has a lot to do with the stress you've been through and then not as much physical activity. I'm getting nervous, (end of the month for me) it is a tad scary to go through this. It better be worth it!!!
Wouldn't it be nice to not have worry about your count all the time? I sure hope you get a long remission.

TTYS
More
15 years 5 months ago #3097 by Joya
Replied by Joya on topic Re:Splenectomy
Hey Fran,

I really hope your counts will stay up!
I'm having my surgery on monday.. I am starting to get nervous now.. it just hit me today.. They are going to remove an organ.. Scary but exciting..
More
15 years 5 months ago #3106 by Katie
Replied by Katie on topic Re:Splenectomy
Fran,
1 month ago tomorrow I had my splenectomy. My counts did go over a million. I was put on agrylin and they went to 524k. I was freaked out too, but my hematologist never was. It's so ironic to worry about too many platelets isn't it? It took me about 3 weeks before I felt almost normal. Now I am completely normal unless I get bumped on my incision, that hurts. So glad you feel you made the right choice!
More
15 years 5 months ago #3108 by FranL
Replied by FranL on topic Re:Splenectomy
Hey future Spleen removal candidates...don't be too nervous. It is better than you think. Of course it is serious and there is pain and recovery...but you can totally do it! I'm amazed how well it went. Things I was worried about didn't happen and things I didn't expect did. So just go with the flow folks...take everything as it comes and do your best. You'll be fine. Good luck to you all! Keep us posted on your progress. High platelets to you all!!!

-Fran
More
15 years 5 months ago #3114 by rere
Replied by rere on topic Re:Splenectomy
Joya,
Good luck to you Monday. I know how you feel. My recovery after the splenectomy is going well. 9 days later very little discomfort. It is still pinch me I can't believe I had the surgery after so much deliberation. I am driving and shopping. The anticipation was greater than the actual event. Please keep us posted.
More
15 years 5 months ago #3116 by rere
Replied by rere on topic Re:Splenectomy
Joya,
Good luck to you Monday. I know how you feel. My recovery after the splenectomy is going well. 9 days later very little discomfort. It is still pinch me I can't believe I had the surgery after so much deliberation. I am driving and shopping. The anticipation was greater than the actual event. Please keep us posted.
More
15 years 5 months ago #3122 by Joya
Replied by Joya on topic Re:Splenectomy
Thank you so much for the support.. I'm happy you are doing good:D That makes me feel like I should be able to handle it as well.. I'm not sure if I'm scared.. It's just the waiting.. I want it to be over with :P Only about 36 hours and then the damn thing will be out.. Counting the minutes:P I'm trying to find some things to get my mind off the surgery so tomorrow.. before being atmitted to the hospital I think I'll go watch the football game of my cousin..

Xx
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
More
15 years 5 months ago #3131 by Angel85
Replied by Angel85 on topic Re:Splenectomy
Good Luck Joya, hope it all goes well for you
More
15 years 5 months ago #3167 by FranL
Replied by FranL on topic Re:Splenectomy
Platelets still high. 829,000 today but my hemotologist is completely calm about it all. He says this is the expected result and they WILL go down and get into a normal range soon. I can take aspirin twice a day if I need peace of mind...so I am. Bonus though...I've lost 14 pounds! So mixed results....

I went back to work today part time and it went well. Very very tired and sat a lot but I made it through. Nap time now!

-Fran
More
15 years 5 months ago #3194 by Lorie85
Replied by Lorie85 on topic Re:Splenectomy
I'm glad you guys surgeries went well and the platelets are up up and away! Just a question though will you have to take prophylactic antibiotics?
More
15 years 5 months ago #3202 by farida
Replied by farida on topic Re:Splenectomy
fran, why did you are losing weight, im sorry for asking this question, im so worry about my son , because he lost alrady lost 6 bounds and he didn't do the surgery yet,
and it's good that you went back to your job , keep posting us , give your selef a good day,
More
15 years 5 months ago #3212 by FranL
Replied by FranL on topic Re:Splenectomy
The weight loss is mostly due to the major decrease in appetite due to the medicines/pain killers. Plus I've been walking a lot to keep the bowels going and improve my stamina and flexibility. I'm off the meds starting today (scary) and I think my appetite will come back eventually. The spleen only weighs about a pound so the rest is from the major decrease in my food intake. I'm hooked on my sugar free popsicyles and eating about 1/2 or less of my normal diet intake. I am kind of happy about the weight loss....a nice little side effect!
More
15 years 5 months ago #3214 by farida
Replied by farida on topic Re:Splenectomy
thank you fran , i hope you will be better without any medication, what about platelts count,how often you have to do cbc now?
More
15 years 5 months ago #3252 by FranL
Replied by FranL on topic Re:Splenectomy
Officially weened off the pain killers now! Yippee!!! Only thing left is to build up my stamina. I'm definitely taking lots of naps and pacing myself. Platelets are still high but I'll get them checked every week for a bit until they settle in. My hemotologist is pleased and calm about my levels so I'll just have to trust things will work out.
More
15 years 5 months ago #3681 by farida
Replied by farida on topic Re:Smyplenectomy
my son had the operation yesterday 10:am , his count 4:00 am today was 157k
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use