Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Splenectomy

More
15 years 6 months ago #2238 by FranL
Splenectomy was created by FranL
My splenectomy is scheduled for March 30th. I was originally scheduled for March 23rd but during my pre-op visit on the 22nd my surgeon decided that my platelets were too low to move forward with it. I've been taking an increased dose of Promacta (75mg) and they were at 41,000 which is high for me...but he insisted they needed to be at 50,000 minimum. So IVIG treatment today to boost them up. Will get a blood count tomorrow and if they haven't gone up enough I'll get another IVIG treatment on Saturday. Hopefully moving forward with splenectomy on Tuesday.
More
15 years 6 months ago #2242 by rere
Replied by rere on topic Re:Splenectomy
Hello Fran
This is my first post to the new board. I wish you good luck with your splenectomy.
After almost two years of being refractory to treatments, I too am going for a laproscopic splenectomy Thursday, April 1st. Tomorrow pre op and Monday IVIG to get
plateles up for surgery.
More
15 years 6 months ago #2244 by ddunn
Replied by ddunn on topic Re: Splenectomy
Good luck fran!!! I go in tomorrow for a bone marrow biopsy and a CT scan. OUtpatient. I hope your platelets are up!!!!!! Keep us posted
More
15 years 6 months ago #2250 by Katie
Replied by Katie on topic Re:Splenectomy
Good luck with everything! I had my splenectomy two weeks ago and am doing well. Just remember that it DOES get better if you experience alot of pain with surgery!
More
15 years 6 months ago #2253 by CindyL
Replied by CindyL on topic Re:Splenectomy
Good luck with the splenectomy, Fran! I wish you lots of platelets.
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
More
15 years 6 months ago #2299 by Angel85
Replied by Angel85 on topic Re:Splenectomy
Good luck with it all, i hope it goes well for you.
More
15 years 6 months ago #2300 by Joya
Replied by Joya on topic Re:Splenectomy
Good luck to the both of you!! I hope this is your solution to ITP!

Please keep us posted!!

Xx
More
15 years 6 months ago #2397 by FranL
Replied by FranL on topic Re:Splenectomy
IVIG treatment on Thursday. Platelets up to 72,000 Friday morning. My nurse said they should continue to go up as the treatment hasn't really kicked in full effect yet. I started to feel pretty rough Friday afternoon and had serious headaches and nausea last night so I guess it has kicked in now. I go back to get my platelets counted Sunday morning. If they are good I'm on for surgery Tuesday. If not so good I'll get another IVIG treatment Sunday and hope they hold till surgery Tuesday.
More
15 years 6 months ago #2399 by ddunn
Replied by ddunn on topic Re:Splenectomy
Fran keep us informed! I had my bone marrow biopsy yesterday, and my CT scan.
I start rituxan on Wednesday.............
More
15 years 6 months ago #2414 by NatalieM
Replied by NatalieM on topic Re:Splenectomy
Denise,

Since you are starting Rituxan so soon after your BMB, that makes me think that you really only have ITP! Have you ever thought of that? My hemo waited a little while after all the testing to watch my platelets for a while and to see if they would have a comeback on their own (which they didn't). I am a total supporter of Rituxan and I think that you will agree! Those 4 rounds have worked for me for a year now! That's a whole year without the constant fretting, googling, and uncertainty! And...it was a breeze for me. Like I said, I slept the entire time. If you're like me I like sleeping, so it was a rather pleasant experience (haha). Good luck with everything and keep us posted! We care about your recovery! Also, what is your current count? I'm just curious :)

Natalie
*Here's to high platelets!*
More
15 years 6 months ago #2443 by ddunn
Replied by ddunn on topic Re:Splenectomy
Thanks Natalie. I am at 66,000. That is where i was wednesday and friday, so i was thrilled that it didnt drop anymore. First time without a drop in a month...but it was only 2 days between cbc's.
More
15 years 6 months ago #2445 by NatalieM
Replied by NatalieM on topic Re:Splenectomy
Really? Wow...what has your lowest count been? To me, 66 is not that low! I only had 17! *sigh* yet another reason why you shouldn't worry! Many people in this forum would kill for 66! Good for you! I'm curious as to your story...how did you find out about the disease in the first place? Like, for me I had a horrendous nosebleed!

Natalie
*Here's to high platelets!*
More
15 years 6 months ago #2453 by FranL
Replied by FranL on topic Re:Splenectomy
Platelets up to 83,000. Everything looks like a go for Tuesday. The IVIG treatment was difficult. Well, the day after was...I was very nauseious and throwing up with a killer headache for about 36 hours. SO glad they don't have to repeat it today.
  • server
  • Offline
  • newcreationchangingdaily
More
15 years 6 months ago #2457 by server
Replied by server on topic Re:Splenectomy
good news Fran. I"ll be praying for you and docs. Let us know when you can how it went.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
More
15 years 6 months ago #2464 by tortie
Replied by tortie on topic Re:Splenectomy
I had a similar bad experience with 1 IVIG and 1 Anti D, not every time though just once of each type? Sometimes pre treating with benadryl can help and also make sure you drink lots of water prior and after. Hopefully you don't have to do it again. I sure hope it all works out great. Good luck for Tuesday.
More
15 years 6 months ago #2486 by farida
Replied by farida on topic Re:Splenectomy
my son will do the surgery as soon as he is done with his final,he is senior heigh school , he has itp for one year and half now , we tried predinsone , ivig , 6 time hospitalized , so sad for him , hema said the next step is splenectomy, my son has a huge hope on the surgery , im so worry i know its 70% good luck , i hope he is one of those,hes was on the hospital 2 weeks ago with count 2k , 2 days of ivig and semndrol ,discharge the third night, count was 237 last weeks ,this week was 123k ,surgen is planning to give him platelets transfusion , but im so worry because he had reaction from platelets transusion one time .
More
15 years 6 months ago #2747 by FranL
Replied by FranL on topic Re:Splenectomy
Splenectomy is over and all went well. It was totally different than I had feared...better. I was up and walking the next day and got out of the hospital the next (so only two days in the hospital). Surgeon said it went really well, my platelets are up to 186,000, and with the pain meds I am doing quite well. Thanks for all the well wishes folks!! :)
More
15 years 6 months ago #2752 by ddunn
Replied by ddunn on topic Re:Splenectomy
Frannnn................so glad to hear from you!! I was wondering how you were doing!
I hope your counts stay UP UP UP!!!!
Denise
More
15 years 6 months ago #2759 by farida
Replied by farida on topic Re:Splenectomy
fran glade that you are doing well, you give me hope for my son too, his platelets up this week to 187k , cbc againe after 2 weeks , i hope they will be in the save count untio the surgery day which is may/24
More
15 years 6 months ago #2764 by Lorie85
Replied by Lorie85 on topic Re:Splenectomy
Good for you Fran!
  • server
  • Offline
  • newcreationchangingdaily
More
15 years 6 months ago #2796 by server
Replied by server on topic Re:Splenectomy
What a relief Fran, so glad to hear your feeling well. I'm believing it will stay that way.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
More
15 years 6 months ago #2800 by FranL
Replied by FranL on topic Re:Splenectomy
Thanks everyone! I continue to do well as long as I take my meds on time. Sleeping better but still no appetite. If anyone wants the details of the surgery feel free to email me and I'll tell you all about it. Like I said, it was much better than I anticipated. Pretty sure I made the right decision. High platelets to you all!!
More
15 years 5 months ago #2896 by tortie
Replied by tortie on topic Re:Splenectomy
Excellent!!! I'm glad you're up and managing so soon after surgery. What pain killers did you get??????? I hope you let us know updates on your counts.
More
15 years 5 months ago #2943 by FranL
Replied by FranL on topic Re:Splenectomy
Pain medicine is Percocet...generic version anyway. I am still pretty dependent on it every 4 hours. Trying to stretch out the time but I end up feeling really really bad. Follow up with the surgeon tomorrow and will probably get a platelet count done then but not sure. One thing is worrying me a bit and this may be too much info, but I haven't had a bowel movement yet. 8 days! Tried dried prunes and lots of salad, then a half dose of laxative, then a full dose of a laxative, and today Milk of Magnesia. Hoping something happens soon. I don't have pain, and I do have gas, just very strange... Walking lots, drinking lots of water, eating fiber. It is a mystery.
More
15 years 5 months ago #2990 by FranL
Replied by FranL on topic Re:Splenectomy
Finally had a bowel movement. 9 days! Nothing awful or massive...just back on schedule. All is well. Follow up with surgeon today. I anticipate he'll agree that all is well. I am feeling so much better!!!
More
15 years 5 months ago #2995 by farida
Replied by farida on topic Re:Splenectomy
good fran , thank you for updating us , im going to my work now but i wanted to read the new post befor i leave , have a nice day all of you,
More
15 years 5 months ago #2998 by FranL
Replied by FranL on topic Re:Splenectomy
Holy Crap! My platelets have skyrocketed to 823,000! My surgeon says everything looks ok and my hemotologist said this was to be expected after splenectomy and they should settle into a normal count soon. I'm on a daily dose of aspirin and totally freaked out by it. Gotta listen to my doctors though...they are not concerned.
More
15 years 5 months ago #3003 by rere
Replied by rere on topic Re:Splenectomy
Good news Fran. I had lap splenectomy surgery last Thursday, April 1. Yesterday my platelets were 671k. Very happy with that news. By the way the surgeon said I had an accessory spleen which he removed...two for one.
More
15 years 5 months ago #3033 by FranL
Replied by FranL on topic Re:Splenectomy
Trying to ween off percocet...it's hard! Taking 1/2 dose and big dose of acetaminopen every four hours. Will see how that goes. My prescription runs out Saturday and I'm a little uneasy about that. I'm improving so it will probably be ok.

Movement is a lot easier. Walking lots and having little outings to the mall and such. Bowel movements are few and far between but they are happening thank goodness. Milk of Magnesia seems to do the trick.

Also the surgical glue and scabs are peeling off and the incisions underneath look really healthy and TINY! Such a relief! They are about 1/4 the size of the scabs on top.

All in all...I'm feeling better each day. Still no appetite and taking it easy...but better each day.

Thanks to all for the help and encouragement! High platelets to you all!!!

Fran
More
15 years 5 months ago #3034 by farida
Replied by farida on topic Re:Splenectomy
fran , what about the platelets count, are they still super high , or became in normal range, i'm so happy you are fine
farida(nahed)
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use