Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Date of Diagnosis

More
15 years 3 months ago #6090 by Nisse
Replied by Nisse on topic Re:Date of Diagnosis
June 29, 2009. Yesterday was one 1 year!
More
15 years 3 months ago #6098 by jules
Replied by jules on topic Re:Date of Diagnosis
Oh! those one year anniversaries it seems like everything in our lives now revolve around a anniversary diagnosis date. Take Care!
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
15 years 3 months ago #6119 by Sandi
Replied by Sandi on topic Re:Date of Diagnosis
In time, you'll lose track of it. You will. I can't remember any more how many years it's been and really have to think about it. After a while, it doesn't matter any more what day it was.
More
15 years 2 months ago #7314 by Ishani
Replied by Ishani on topic Re:Date of Diagnosis
My symptoms started around August 2008, but the date of diagnosis was February 5, 2009.
Look forward,
and the shadows
will fall behind you!
More
15 years 1 month ago #7361 by Caroline109
Replied by Caroline109 on topic Re:Date of Diagnosis
Sept. 14, 1980-no symptoms, only bloodwork done at the time of my csection.
Caroline
Diagnosed with ITP 9/14/1980, the day oldest son was born, & it continued through the births of my other 2 sons and continues now! No treatments until March 2011 when I had a TKR and my count decided to plunge. Sons now almost 25-30. My spleen's still with me.
PKR 09/2008
TKR 04/2010
TKR...
15 years 1 month ago #7435 by
Replied by on topic Re:Date of Diagnosis
Hannah was diagnosed in April, but looking back, I think she was having symptoms for months before that, probably in November or December.

April
  • karenr
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
More
15 years 1 month ago #7442 by karenr
Replied by karenr on topic Re:Date of Diagnosis
September 2000--
15 years 1 month ago #7458 by
Replied by on topic Re:Date of Diagnosis
I don't really remember. It's not something I wrote down or kept track of.
Must have been 8 years when first spotted. I basically ignored both doctors until I ended up in the ER, then The James Cancer Center. That was probably about 7 years ago.
I don't recall anything special happening in March though.
More
15 years 1 month ago #7459 by DeeDee Marie
Replied by DeeDee Marie on topic Re:Date of Diagnosis
My first diagnose was July 17, 2006. Went into remission for 4 years and had a relapse on July 18, 2010. Four years almost to the day! This time I'm having a lot harder time of it and having a hard time getting my platelets up.
More
15 years 1 month ago #7574 by Gort
Replied by Gort on topic Re:Date of Diagnosis
July (of 1967). Or so my mother tells me...
--Steve
Living with ITP since 1967.
"Abandon negative action; Create perfect virtue; Subdue your own mind. This is the teaching of the Buddha."
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
15 years 1 month ago #7594 by Sandi
Replied by Sandi on topic Re:Date of Diagnosis
You win!
More
15 years 1 month ago #7637 by jackie09/17/2005
Replied by jackie09/17/2005 on topic Re:Date of Diagnosis
thats funny cause i have noticed alot in spetember with my being one of them september 17th 2005 exactly a week before my birthday blah =/
More
15 years 1 month ago #7797 by Kristine
Replied by Kristine on topic Re:Date of Diagnosis
January 2007. Winters are the hardest on me.
More
15 years 1 month ago #7798 by Rhiannon
Replied by Rhiannon on topic Re:Date of Diagnosis
my very first 'attack' was May 1994. The second was October 1997. The third Dec 1998. etc... It be lovely to think there is a seasonal link somewhere along the line and may well be for some people but mine is purely idiopathic.
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use