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Relapsing again

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7 years 3 months ago #63780 by KellyS
Relapsing again was created by KellyS
Hi All,
I just had a blood test today and my platelets are down to 28. Previously they hovered closer to 50. My doc doesn't treat (prednisone) unless I dip below 20. The last time I got down this low was in September 2016. I can't help but feel panicked like it is unsafe for me to be out in the world when I got this low. Has anyone else had experiences with the ups and downs? I feel very alone as I don't know anyone else with ITP!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 3 months ago #63782 by Sandi
Replied by Sandi on topic Relapsing again
How are your symptoms? Try not to panic. I have rarely ever heard of anyone having problems being out in the world with low counts. Even the few who have had accidents (such as falling) have been okay. Your counts are still close to the safe zone of 30k.
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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7 years 3 months ago #63784 by mrsb04
Replied by mrsb04 on topic Relapsing again
Kelly
Try not to panic. If you are not actively bleeding carry on your life as normal. My count always drops at the slightest hint of a cold. I've worked with counts as low as 2 without any ill effects.
When I was planning my Australia holiday I asked my Haemo what was the lowest count to be safe to go. She said anything above zero.
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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7 years 3 months ago - 7 years 3 months ago #63788 by Hal9000
Replied by Hal9000 on topic Relapsing again
Kelly, once upon a time there was a guy here named 'weirdjack'. In one post he described the psychology of ITP with amazing clarity. See what you think:
pdsa.org/discussion-group/6-general-itp-discussion/28044-does-stress-effect-your-itp.html#40943

Help, stop this crazy thing.
ITP Types and Treatments by HAL
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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