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No period at all

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13 years 4 months ago #24601 by KittieG
No period at all was created by KittieG
Was curious if anyone knew if stopping the steroids could affect your period - I haven't had a period since march 17!

I stopped the steroids and all other medications about one month ago, and now I seem to have no period.

FYI - I did take a test, and no, I'm not pregnant.

At least I better not be.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 4 months ago #24629 by Sandi
Replied by Sandi on topic Re: No period at all
Kittie - yes, that is common. It happened to me. It will start again, and you may be irregular for a while. It's okay.
The following user(s) said Thank You: KittieG
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13 years 4 months ago #24630 by KittieG
Replied by KittieG on topic Re: No period at all
It really blows my mind how many changes that medicine makes to the body - and never really gave me the one GOOD change (of higher platelets)!
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13 years 4 months ago #24644 by DanielaG
Replied by DanielaG on topic Re: No period at all
My period was two weeks late while on Prednisone, and my next period, (when I went off pred) was about five days early. Both my Hematologist and the Pharmacist said that irregularities are a common side effect.

And yes, it is remarkable how much it changes your body :S

KittieG- your platelets are still very low?
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13 years 4 months ago #24657 by amandadinwiddie
Replied by amandadinwiddie on topic Re: No period at all
Phew...I'm so glad to hear that you all are having/ had the same thing happen with your periods. I just came off of the steroids 4 weeks ago, and I haven't had a period since March, and it lasted 7 days while I was in the hospital. I've been worried that it won't come back, but I'm glad to hear it will, eventually. :) I'll just enjoy not having it for now. :)
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13 years 4 months ago #24722 by KittieG
Replied by KittieG on topic Re: No period at all
Daniela - I don't know what my numbers are right now. I got them checked on 4/27 and they were 17k. I like to pretend they are still that now!
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13 years 4 months ago #24785 by DanielaG
Replied by DanielaG on topic Re: No period at all
Kittie-With such a low number, it's probably a good thing that your period has been absent.

I hope that your counts go up soon and that you can get off of the steroids. Best wishes!
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13 years 4 months ago #24892 by KittieG
Replied by KittieG on topic Re: No period at all
Daniela. - I'm happy to say that I am off the steroids now - have been for about a month or so now. it's been great.

And my period finally came back. I never thought I'd be happy to have a period, but it's just another sign of normalcy, so it was like the return of an old friend. It was a little heavier, but nothing crazy or noteable.
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13 years 4 months ago #24903 by DanielaG
Replied by DanielaG on topic Re: No period at all
Kittie-That is good news, both about the steroids and your period. Hopefuly your numbers continue to rise.
The following user(s) said Thank You: KittieG
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13 years 4 months ago #24940 by CDMK
Replied by CDMK on topic Re: No period at all
Hi Ladies, I was just wondering if u ever hade problems with your periods with ITp i have been having problems with it having them when i souldnt and i been on the pills since i was 13 and i am 30 now and dont know what tod anymore, please help.
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