Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Vitamin D levels in Autoimmune disorder

  • Chad89
  • Topic Author
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
More
3 years 1 month ago #72548 by Chad89
So I came across quite a bit of new research suggesting that Vitamin D levels in patients with autoimmune disorders of any kind are usually low. If you get a chance to check out a few of the studies on Coimbra protocol and Vitamin D levels it’s quite interesting. Lots of videos by different doctors and double blind studies quite recently that show some good evidence. 
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
3 years 1 month ago - 3 years 1 month ago #72549 by mrsb04
Replied by mrsb04 on topic Vitamin D levels in Autoimmune disorder
My levels were very low. I have been  taking daily Vit D3 supplement  for last 8 years but nowhere near as high as  Coimbra protocol.
Uk guideline is a max of 4,000IU/day to reduce the risk of hypercalcaemia.  
  • Chad89
  • Topic Author
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
More
  • Chad89
  • Topic Author
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
More
3 years 1 month ago #72553 by Chad89
Replied by Chad89 on topic Vitamin D levels in Autoimmune disorder
If you go through with Coimbra they monitor your levels and take care not to cause problems associated with hypercalcemia. There are a couple of YouTube links above and if you Google Coimbra protocol some other stuff will come up. One of the videos is the double blind study. 
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
3 years 1 month ago #72559 by mrsb04
Replied by mrsb04 on topic Vitamin D levels in Autoimmune disorder
Videos are interesting but I am sticking where I am for the time being:-
A] After waiting almost a year I have just started a clinical trial  www.clinicaltrials.gov/ct2/show/NCT03395210  and  have no wish to jeopardise it by changing current meds. 
B] I take 4800IU Vit D3 + 3000mg Calcium carbonate a day for my osteoporosis. I am not prepared to drop the dose of calcium as I normally run at a below normal level anyway. 
More
3 years 1 month ago #72562 by MelA
Replied by MelA on topic Vitamin D levels in Autoimmune disorder
Mine were quite low and I was put on a very high dose of D3 one time a week for so many weeks - tested again and in normal range and now I take 2000 IU a day.   I haven't had a lot of sinus infections as in the past since my D level is normal now.    

Everyone, in my opinion, should have their D tested.

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: Chad89
  • Chad89
  • Topic Author
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
More
3 years 1 month ago #72569 by Chad89
Replied by Chad89 on topic Vitamin D levels in Autoimmune disorder
I have an appointment with one of the Coimbra protocol Dr’s at the end of the month. I’ll pass on any useful information I receive.
The following user(s) said Thank You: Lourdes, MelA