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Marijuana

pattilustig
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8 years 1 month ago #60188 by pattilustig

Marijuana was created by pattilustig

I would love to hear if anyone has had experience using any form of Marijuana to impact their ITP?

binarychick12
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https://kirstensjourney.wordpress.com/

8 years 1 month ago #60252 by binarychick12

Replied by binarychick12 on topic Marijuana

I was thinking about trying a little of it and seeing if my platelets increase. I asked my hematologist and he said, well, "It will not hurt your platelets" and advised there are not even studies proving whether is works or not.

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qwerty
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7 years 7 months ago #62516 by qwerty

Replied by qwerty on topic Marijuana

IM taking CBD oils now (2-3 drops just before bed) so far been waking up feeling amazing.

i've been a farily regular marij. user for pretty much past 5 years, (once -> twice a week) although i stopped for about a month before this ITP issue surfaced, but im considering to slowly ease back into occasional usage again.

JRhodd5
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7 years 7 months ago #62588 by JRhodd5

Replied by JRhodd5 on topic Marijuana

Hi pattilustig! I've had ITP for 17 years now and just recently in the last year become a steady cannabis user and it's been very recent I even thought about it and paying attention to my platelet counts. I can tell you that since being diagnosed to ever be over 100,00 in counts was only when doing some sort of treatment which included high doses of Prednisone, Gamma Gobulin and Platelet transfusions. Also several Rituxan treatments, in what finally keep my platelet levels steady in the 40,000 to 70,000 range 4 years after being diagnosed having some issues and treatments here and there. Last Spring 2017 I had my first 100,000 reading (treatment free for five years) and been using marijuana steadily for several months at that reading. I just today had my first blood draw since then and I am at 110,000! I'm am so hoping more research can be done on this. I am a true believer!

pattilustig
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7 years 7 months ago #62596 by pattilustig

Replied by pattilustig on topic Marijuana

Very encouraging! I'm curious what your use of marijuana looks like for the past several months? Are you working with medical marijuana of some sort? I am considering going to a clinic now that it is legal for medical purposes in Florida.

jhend1125
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7 years 2 months ago #63968 by jhend1125

Replied by jhend1125 on topic Marijuana

I have also just started looking into MM for ITP but couldn't find any information even anecdotal. I know there are almost zero studies done on MM since it's Federally illegal. I have seen one or two posts here under CBD OIL that indicated it did not help increase platelets. I suspect one would need a combo of THC and CBD. I would love to hear from anyone with experience.

Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

7 years 2 months ago #63971 by Sandi

Replied by Sandi on topic Marijuana

Marijuana is being legalized in many states for medical usage, but ITP is not on the list. A few states have legalized it with no medical requirement. IF I were going to consider using marijuana medically for any reason, I would not ever buy it off of the street. The synthetics that are put into it these days are terrifying.

jhend1125
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7 years 2 months ago #63977 by jhend1125

Replied by jhend1125 on topic Marijuana

I agree with Sandi. Never, never buy off the street. We are talking about MEDICAL here. You need a formula specifically for you and the ingredients must be lab tested. This "market" is about to explode with more and more states legalizing both Medical and Recreational Marijuana. ALSO always be aware it is illegal to transport even MM across state lines so you can't buy it in VT and bring it to NH. Pure CBD is OK just nothing with THC in it.

Vdeutsch85
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7 years 2 months ago #64130 by Vdeutsch85

Replied by Vdeutsch85 on topic Marijuana

I am not sure what state you live in but I live in Arizona where medical marijuana is legal. There are different categories in which you can qualify. I have qualified under chronic pain. I use high CBD when I am very achy and it does help.

Desiré
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7 years 6 days ago #64805 by Desiré

Replied by Desiré on topic Marijuana

@JRhodd5 what form did ypu use it in? Tea? Drops? I would like to know as I want to also give it a try.

MelA
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7 years 1 day ago #64838 by MelA

Replied by MelA on topic Marijuana

Desire - are you thinking mj could raise your platelet count?

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Desiré
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7 years 1 day ago #64839 by Desiré

Replied by Desiré on topic Marijuana

Mel, I have no idea. Was wondering. Was hoping it could. But only if I knew that it helped someone else.

Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

7 years 12 hours ago #64852 by Sandi

Replied by Sandi on topic Marijuana

I have no knowledge of marijuana raising platelet counts of anyone here in the past 20 years. Sorry.

VJ - I bought CBD oil but it makes me dizzy. Does it do that to you? I've noticed no benefit.

Desiré
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7 years 8 hours ago #64857 by Desiré

Replied by Desiré on topic Marijuana

I didn't really think it could Sandy, but one of the comments on this chat of mj a jrodd says that he is a believer because it helped for him. But I'm sceptical. Was hoping there would be more people saying they have tried it and it worked or didn't.

MelA
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6 years 11 months ago #64880 by MelA

Replied by MelA on topic Marijuana

Sandi I've not heard of anyone who has said CBD oil makes them dizzy - can you ask the company who makes it about that? Regarding no benefit - are you taking the amount suggested? If so then I wouldn't buy any more - or you might try another brand. I could tell you who I will use if try it again.

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Sadieb151$@
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6 years 7 months ago #65785 by Sadieb151$@

Replied by Sadieb151$@ on topic Marijuana

I read about this last night. Found this info. From my understanding, marijuana increases platelet production. www.ncbi.nlm.nih.gov/pmc/articles/PMC2190025/

medical-dictionary.thefreedictionary.com/thrombogenesis
The definition of thrombogenisis is clot formation...interesting.

en.m.wikipedia.org/wiki/Haematopoiesis

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 5 months ago #66360 by GrouchoMarx

Replied by GrouchoMarx on topic Marijuana

Oh, Yeah....

Reefer AL
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5 years 4 days ago #69859 by Reefer AL