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Prednisolon

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13 years 1 month ago #27638 by Girl 21
Prednisolon was created by Girl 21
Hello.

I was diagnostic ITP in March 2012. I have gone on Prednosolon since. But now I have hear-loss, who is a big problem for me. Is it someone who have the same unpleasent side effect? I want to stop taking Prednisolon, but when I say that to my doctor, he just say that i have to do spenektomy. I don't know what I should do, and I feel the doctors doesn't hear what I say.

I need some advice.
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13 years 1 month ago #27642 by Ann
Replied by Ann on topic Prednisolon
Which country are you living in? Not all treatments are available in all countries so it depends where you are what your options are. But if you can get a second opinion from another doctor that would be a start.
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13 years 1 month ago #27646 by Dean
Replied by Dean on topic Prednisolon
Well, you DO NOT have to a Splenectomy. That decision is up to you. Splenectomy for some is a last resort as it is not a guarantee for ITP. Treatments for ITP is a wait and see game. One waits to see if a treatment works. The thing with a Splenectomy is that once it is removed there is NO replacing it. The other thing is that one is more prone to illness and recovering from an illness. Do as much research as you can on treatments. Alot of info here.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 1 month ago #27651 by Sandi
Replied by Sandi on topic Prednisolon
Who said Prednisone caused the hearing loss?

I have hearing loss too, but it is an inherited disorder and not Prednisone related. Have you been to an ENT?

There are other choices besides Prednisone and splenectomy. Another opinion is a good idea.
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13 years 1 month ago #27711 by Girl 21
Replied by Girl 21 on topic Prednisolon
Thank you for the answears. I'm from Norway. I know that it's more treatments than Prednisone and Splenectomy who is available, but the doctors say that they want to take a splenectomy before they try other treatments. Do you know if it is eny side effects on the other treatments? I don't understand why they don't give me some other medicin.
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13 years 1 month ago #27712 by Girl 21
Replied by Girl 21 on topic Prednisolon
It was my doctor who sad that Predisone caused hair loss. Can I ask what ENT is?
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13 years 1 month ago #27713 by Ann
Replied by Ann on topic Prednisolon
Oh dear, bit of a misunderstanding there. Sandi thought you were talking about hearing loss when you are in fact talking about hair loss. Some here have talked about hair falling out with steroids, it does grow back.

Some doctors like splenectomy and some don't. Maybe you could see a different doctor and get another opinion.
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13 years 1 month ago #27714 by Girl 21
Replied by Girl 21 on topic Prednisolon
Hihi, yes that was a misunderstanding. I'm sorry.
I'm going on 5 mg Prednisone, but do you think that's the reason for my hair loss? I don't know what I should do. I don't want to loss my hair.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 1 month ago #27730 by Sandi
Replied by Sandi on topic Prednisolon
Ha! Yes, I did think you meant hearing loss!

Sometimes tapering from higher doses can cause hair loss, but it should stop soon and it will grow back.
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13 years 1 month ago #27734 by Girl 21
Replied by Girl 21 on topic Prednisolon
Ok. Then I hope it would stop soon :)
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13 years 1 month ago #27746 by Dean
Replied by Dean on topic Prednisolon

Girl 21 wrote: It was my doctor who sad that Predisone caused hair loss. Can I ask what ENT is?


ENT is short for Ear Nose Throat specialist.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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