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NPLATE had a stroke

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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13 years 10 months ago #20434 by Kelirae24
NPLATE had a stroke was created by Kelirae24
I am 26 i have had ITP for 8 years, after everything stopped working steroids, ivig, rituxub, had a splenectomy I started nplate dec 2010, with counts of 124 the friday before left for a cruise and was given my usual dose of nplate firat day on the cruise my left arm went numb and my face was drooping come to find out i had a stroke, my platelets were at 405 by now and still going up i am sharing my story because ive been told my dr should have never tried to keep my counts in a normal range just a safe range and would not wish this on anyone has anyone else had a stroke bc of the way nplate was administered?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 10 months ago #20436 by Sandi
Replied by Sandi on topic Re: NPLATE had a stroke
Keli:

I'm so sorry to hear this. Have you recovered?

You're right, counts that are too high can cause problems and I sometimes feel frustrated with the reimine that some people are on....multiple meds at the same time, etc. Being asplenic can also raise the clotting/stroke risk, so people need to be careful when mixing too many meds that can cause clotting.

Have you been tested for APS? I can't remember.
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13 years 10 months ago #20451 by CindyL
Replied by CindyL on topic Re: NPLATE had a stroke
Sorry to hear that, Keli! Hope you're doing better now.
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13 years 9 months ago #20522 by poseymint
Replied by poseymint on topic Re: NPLATE had a stroke
I'm so sorry to hear your story. that is just terrible. Keep us posted if you can. Sounds like you deserve financial compensation. Best wishes for a full recovery.
  • Kelirae24
  • Topic Author
  • Offline
  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
13 years 9 months ago #21164 by Kelirae24
Replied by Kelirae24 on topic Re: NPLATE had a stroke
Hi, thank you all. its now been 4 months since my stroke still dont have feeling in my left arm but i can move it ans use it =) and yes i have been tested for everything and always comes back PURE itp i just hope new treatmenta are on their way we all need a new batch i am back on nplate thats not working at all, and ivig every single week.....o cant keep doing it to my body im tryin a natural route may not work but at least i can say i tried everything any words would be appreciated thanks im sooooo over qll of it this is the first time i am truely discouraged
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