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After 134 days, I'm prednisone free

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15 years 5 months ago #9577 by SteveC
After 134 days, I'm prednisone free was created by SteveC
10y after ITP Dx and spleenectomy I crashed from low 300's to 10 in 3 weeks! :(

134 days of pred (it did nothing but make me irritable, sleepless and hungry. That's twice I've been on it without ANY positive impact. It'll be the last time I accept Pred for ITP treatment. :angry:

Two hospital stays (pneumonia and extremely early stage of septic shock) :X

Thrush in my mouth and suspected in stomach

Four Rituxan infusions

Staph infection post hospitalization (Geez - wonder where that came from!)

Count as low as 10

2x/week cbc and daily when hospitalized (thankfully I have good insurance)

9 weeks after starting Rituxan count now in the 270 range (5 of past 6 weeks with a drop of 200 in week 4 of 6 but bounced back in week 5)

Thank You Jesus for Care Givers (all of them) who commit their lives to caring for others, for supportive family and friends, AND PDSA friends who provide a calming perspective when the world seems to be falling apart!
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 5 months ago #9583 by Sandi
Replied by Sandi on topic Re: After 134 days, I'm prednisone free
Good for you, Steve! Just goes to show that things can, and do, get better.

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15 years 5 months ago #9590 by Lorie85
Replied by Lorie85 on topic Re:After 134 days, I'm prednisone free
Good to see the counts are up Steve! :)

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  • server
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  • newcreationchangingdaily
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15 years 5 months ago #9592 by server
Replied by server on topic Re:After 134 days, I'm prednisone free
Glad to see your doing so well Steve! What a ride huh? There is no way I'd be on prednisone that long with no improvement! Your strong! And to your last comment.....Amen!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.