Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

I lost Don

More
15 years 7 months ago #8546 by donswife48
I lost Don was created by donswife48
Don passed away yesterday suddenly from a cerebral hemmorage. He arrived at the hospital with a count of 1 and they said there was nothing they could do to bring up his platelets so they could operate. I want to thank all of you have helped me through this short time with ITP. You help and wisdom was very much appreciated. Hug your children, spouses and parents for me and I wish you all have a life free from ITP symptoms. Thank you and goodbye. Nancy

Please Log in or Create an account to join the conversation.

  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
More
15 years 7 months ago #8547 by Angel85
Replied by Angel85 on topic Re: I lost Don
I'm so sorry Nancy, I wish there was something I could say or do to help take the pain away, but I know I can't. You and your family are in my prayers and thoughts for the coming days and months. I am very saddened by this news, just know your ITP family here will always be here if you need to talk.

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8548 by ggundel86
Replied by ggundel86 on topic Re:I lost Don
My heart goes out to you Nancy. I am so sorry to hear about your loss.

Please Log in or Create an account to join the conversation.

  • Melinda
More
15 years 7 months ago #8549 by Melinda
Replied by Melinda on topic Re: I lost Don
Nancy I cannot wrap my head around this. I am so very sorry for your loss, I wish there was something I could do to help you. You are in my thoughts.

Hugs, Melinda

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8550 by julia
Replied by julia on topic Re:I lost Don
Oh Nancy im so sorry! No one can imagine the hole you and your family feel. Thinking of you at this sad time.
Take care
Julia

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
15 years 7 months ago #8553 by Sandi
Replied by Sandi on topic Re:I lost Don
Oh Nancy! I am so sorry. It just doesn't seem real.

Please stick around as much as you'd like - you don't have to leave us yet. We'd like to know how you are doing; we really care.

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8562 by snowgoose
Replied by snowgoose on topic Re:I lost Don
Dear Nancy,

I was very sad to read of your loss - and shocked. No doubt you are in shock too. Please consider staying around, as in time you may find it helpful to have the support of others who understand, and as Sandi said care. Right now you will be taking it day by day, please know that you are in my prayers for comfort, peace and support at such a difficult time. Sending you a huge cyber hug all the way from New Zealand.

Vanessa

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8563 by hairball01
Replied by hairball01 on topic Re:I lost Don
Nancy, I am really going to miss hearing from you about Don and all his trials. My sympathy to you and your family.

Please Log in or Create an account to join the conversation.

  • april
More
15 years 7 months ago #8565 by april
Replied by april on topic Re:I lost Don
Dear Nancy,

I'm so sorry to hear this! You both had been through so much already. But what a testament to love you were, with him through thick and thin. You'll both be missed.
I pray you'll find peace and comfort over time.

Big hugs,
April

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8571 by tamar
Replied by tamar on topic I'm sorry
Dear Nancy,
I'm so, so sorry. My thoughts are with you.

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8578 by athos45
Replied by athos45 on topic Re:I lost Don
My deepest sympathy and condolences to you Nancy.....

You will always be known as DOnswife. You have been a living example to us on how to love. I thank you for it.
Father of Tonio, 8 yrs old w Chronic ITP

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8580 by CindyL
Replied by CindyL on topic Re:I'm sorry
Nancy, so sorry to hear of your sad loss! It just doesn't seem possible. Thoughts and prayers to you and your family at this time. Please let us know how you yourself are doing after you have time to heal.

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8582 by kantooh86
Replied by kantooh86 on topic Re:I'm sorry
I'm really sorry for your loss

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8584 by Michelle
Replied by Michelle on topic Re:I lost Don
Oh My God - Nancy.

There just are no words.

I am so sorry.

My heart aches for you. Please - Take care of yourself.

-Chelle

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8585 by Ishani
Replied by Ishani on topic Re:I lost Don
I am so sorry, Nancy. My thoughts are with you and your family.
Look forward,
and the shadows
will fall behind you!

Please Log in or Create an account to join the conversation.

  • server
  • Offline
  • newcreationchangingdaily
More
15 years 7 months ago #8593 by server
Replied by server on topic Re:I lost Don
Nancy.... :(
You are loved.
I pray for The Lords peace and comfort for you.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8602 by gothicgirl
Replied by gothicgirl on topic Re:I lost Don
Sorry for your loss :(

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8604 by lili
Replied by lili on topic Re:I lost Don
I am so sorry to hear this and I wish there was something I could do to help.

Lily

Please Log in or Create an account to join the conversation.

  • patti
More
15 years 7 months ago #8606 by patti
Replied by patti on topic Re:I lost Don
Nancy,

I am so sorry for your loss. It is so heartbreaking to read this. May God comfort and keep you during this time and in the days ahead.

patti

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8607 by tacmom
Replied by tacmom on topic Re:I lost Don
Nancy, I am so sorry to hear about Don's passing! It doesn't seem possible! :( I hope you will take some comfort in knowing that you have also supported the rest of us during Don's journey by sharing his ITP experiences. It goes to show how sometimes as a caregiver, we try to do everything we can and in the rare of the rarest cases, ITP still wins! Please know that we are all thinking of you during this time of grief! Hugs to you!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8618 by ktonooka
Replied by ktonooka on topic Re:I lost Don
Nancy,

I am so sorry for your loss. My thoughts and prayers go to you and your family.

Karen
mom to Jordan

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8621 by DeeDee Marie
Replied by DeeDee Marie on topic Re:I lost Don
Nancy, I'm so sorry to hear about Don. I can hardly believe it. I felt so sure that he would be okay. My heart goes out to you and your family. My thoughts and prayers are with you always.

Sincerely,
Dee Dee

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8641 by lornahalbert
Replied by lornahalbert on topic Re: I'm sorry
My deepest sympathies. I am so sorry for your loss.

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8645 by juliannesmom
Replied by juliannesmom on topic Re:I lost Don
Nancy,
I am so sorry for your loss. You are in my thoughts and prayers. This is the scariest risk of ITP, and I pray for a day when ITP can be cured and no family goes through this grief again with ITP.
Norma

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8652 by Rhiannon
Replied by Rhiannon on topic Re:I lost Don
My prayers and thoughts are with you at this time as am more than aware of the risk with myself this summer being told to go straight to the city hospital if I experience blurred vision. (and on wait and see at moment) I have since worked out mine could be related to vertigo migranes but nothing has been verified as haven't experienced another episode (yet). I am only writing this to help you realise I am more than aware of the cerebal bleeds and hemorrages. Am sorry you experienced this and I hope you wont be offended by me praying for you at this time?

Am so very sorry

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8659 by lornahalbert
Replied by lornahalbert on topic Re:I lost Don
This actually brings tears to my eyes. I've seen your posts several times, and you always show care and concern for Don. I can not imagine what you are going through. I hope that you have a great support group outside of these forums! We love you as well and are here for you!

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8680 by Gort
Replied by Gort on topic Re:I lost Don
You are a hero in my book -- the way you took care of him. I am very sorry for your loss.
--Steve
Living with ITP since 1967.
"Abandon negative action; Create perfect virtue; Subdue your own mind. This is the teaching of the Buddha."

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8683 by ddunn
Replied by ddunn on topic Re:I lost Don
I read this post yesterday, and I think I was so shocked, I just didn't know what to say....
I still really dont know what to say, other than I am so very, very sorry.

Please don't leave the group here. This group really cares.
You were so attentive to Don's needs, and tried so hard with research etc to find anything that you could to help him.
I know nothing we say will make it better, but know you are in our thoughts and prayers.
Please stop by when you are up to it, and let us know how you are doing.

My deepest sympathies.
Denise

Please Log in or Create an account to join the conversation.

More
15 years 7 months ago #8694 by Caroline109
Replied by Caroline109 on topic Re:I lost Don
I am very sorry to read this. My condolences to your family.
Caroline
Diagnosed with ITP 9/14/1980, the day oldest son was born, & it continued through the births of my other 2 sons and continues now! No treatments until March 2011 when I had a TKR and my count decided to plunge. Sons now almost 25-30. My spleen's still with me.
PKR 09/2008
TKR 04/2010
TKR...

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.