holding pattern....

It's been 8 weeks since I've had NPlate and 7 weeks since Rituxan ended. My counts are staying in the safe range, anywhere from 44 to 94. I went to doc yesterday and he has changed my weekly CBC's to every other week. I guess that is good news...right? Why do I feel so mixed up about it?

I think one of the hardest part of ITP is the lingering uncertainty. It took me 5+ years to stop wondering about every weekly CBC and now every next weekly CBC seems critical to know what's happening. I worry about still being in freefall (215 -> 27 in 6 weeks after 10 years of 300ish). I pray you'll find a source of strength in peace to guide you - every day is bringing me a "little" more peace via my Lord and Savior - I wish I could claim its easy but in truth I'm still struggling.

May you find the blessing of peace.

Gretchen - this is part of allowing ITP to slide to the back burner and trying to go back to normal life. You can always go in for a CBC if you feel the need. Sometimes CBC's become overkill during times of stability. You're doing good, girl!

thank you for the responses. Steve, I do have that relationship with my Lord and Savior also. That is the only way I get through any day! Thank your for the prayers, I'm a firm believer in the power of prayer. Sandi, letting ITP slide to the back burner....I guess that's the struggle! I wish there was a prescription for that! Though I might not take it cuz I don't like taking pills!! LOL. Thank you for the encouragement.

I'm so happy for you! I've been watching your posts because you finished the Rituxan when I was getting ready to start it.
It's been one week and a day since my last Rituxan infusion.

I hope I remain stable enough to have reduced testing - although, I will feel the exact same way if it actually happens.

Congratulations! Try to enjoy it!!