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mixed news

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15 years 10 months ago #5969 by stevek
mixed news was created by stevek
well im coming off te steroids and my count is up to 188 from 138...great news
But a recent bone scan has revealed osteopenia.From steroids i presume.now i have to take calcium 1500mg and vit D 800 mgs..
has this happened to anyone else?what is the ramifications .?

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15 years 10 months ago #5975 by CindyL
Replied by CindyL on topic Re:mixed news
Hey, Steve. I've been taking the extra calcium +D since being on the pred. That's pretty much since 2004. Plus, I take a once/week pill too.

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  • Melinda
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15 years 10 months ago #5983 by Melinda
Replied by Melinda on topic Re: mixed news
I take calcium +D +minerals 2x a day - and last year added 1000iu of vitamin D when blood work showed my level of vitamin D low. Last time I really took prednisone was in 1993 - since then I've been on it a couple times for sinus issues but only for a few days.

I'm glad your doctor ordered that bone scan - not sure how many do.

Good count!

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15 years 10 months ago #5985 by stevek
Replied by stevek on topic Re:mixed news
actually i,m the one who suggested it.after long term side effects were discussed.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 10 months ago #5987 by Sandi
Replied by Sandi on topic Re:mixed news
My Rheumatologist insists on a bone density every year. So far, so good, even though my D level is low (on prescription doses) and I am on steroids constantly.

Take the Calcium and D - I'd imagine they would help or they would have put you on Fosamax or one of the other bone builders.

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15 years 10 months ago #6011 by lili
Replied by lili on topic Re:mixed news
I take Calcium and D too. My doctor says that you can only absorb 500 mg at a time, so it's important to split your dose up. I was getting muscle cramps and she said that the calcium would help. They've improved a lot now that I'm careful not to take the calcium all at once.

lily

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15 years 9 months ago #6405 by stevek
Replied by stevek on topic Re:mixed news
UPDATE YAHOO After everything i have been/going through my platlets are up to 211 ..almost 3 weeks no steroids no mood fluxes ........and no talk of alternatives...Dr in 3 weeks thats momentous...

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.