Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Treatments

More
3 years 9 months ago #72523 by Bassmaster57
Treatments was created by Bassmaster57
Hello everyone,
Has anyone had any treatments that worked " TOO WELL"?  I was diagnosed about 1 year ago.  After receiving 2nd Maderna vaccine my platelet count dropped to 15k about 30 days later. I was given Dex Pulse treatment for 4 days and my platelet count shot up to over 800... Hemo was very surprised at my response. Next treatment was IVIG, again platelets shot up to over 800 in 2 or three days. Next, Promacta 25 Mg per day. Platelets shot up to 1 million in just a few days. Stopped that immediately... Now trying Nplate tweeking doses. 2mcg /kg shot me over 1million again. Stopped that immediately. Last injection at 1.5 mcg/kg has not worked at all. Platelets down to 25 k today. checking again tomorrow. I have never had any bleeding problems, only petichae on my lower legs when under about 30k. Thank you in advance for any replies....   

Please Log in or Create an account to join the conversation.

More
3 years 9 months ago #72524 by ImPatient
Replied by ImPatient on topic Treatments
Did you ever try a much lower dose of cortisone, since your previous treatments seem to have been too much? Ask your doctor about it... Good luck!

Please Log in or Create an account to join the conversation.

More
3 years 9 months ago #72532 by MelA
Replied by MelA on topic Treatments
How far apart were these different treatments given?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.