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Quick update- staying in the 100s unmedicated

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4 years 1 month ago - 4 years 1 month ago #72230 by ImPatient
Quick update- staying in the 100s unmedicated was created by ImPatient
Hey! I thought I'd let you know how things went for me since I haven't posted in a while.
Reminder- After Dex, Pred, NPlate & a year Revolade (lowest count 13) I started eating fish (vegan for 17 years before that) and at the same time my platelets went into the hundreds, we lowered Revolade every few weeks.
Now, I've been off for over a half year. A lot less joint pain, I was 30kg over my normal weight, now 20kg. Still diarrhea, Xanthelasma, and fatigue. Hair stopped growing above my belt line, now grows very slowly again. I got my period back too, I didn't have it most of the time on Revolade. Once I was at 40, but it might've been a mistake, other than that always 100-140 since I last posted. Hema check-up every three months. I hope you're all well. 

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4 years 2 weeks ago #72304 by VVeenM
Replied by VVeenM on topic Quick update- staying in the 100s unmedicated
That’s wonderful news!!
The following user(s) said Thank You: ImPatient

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.