Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Hematology machine...

More
4 years 2 months ago #72204 by Toby-Wan-Kenoby
Hematology machine... was created by Toby-Wan-Kenoby
I invested in a haematology analyser. I have started 5 days ago to test me in 12 hour intervals.
The first few days I found that I was losing more platelets during the night than during the day.

But the sample size is too small so far.
I started on a high at 198 (3/1) as I was coming off nPlate and I was having one of my rather rare high points. A week earlier I was in single digits with no change in the frequency and dose of nPlate (500 mcg).  This evening (3/6) I am at 5. My base level is really 1-2. 
I bought the machine to experiment with alternative treatments. I will try what "Cindy1" tried with the parasite treatment. I will get weekly IVIG to get my levels to moderate levels but overall the weekly rhythm is not too complicated to disect. I will try to keep updates here.

The doctors are out of options, so not I am taking responsibility for my own body. If it can learn to attach platelets it can unlearn it as well. I think the main target is my gut biom. Whenever I have to take antibiotics my platelets shoot up.
Diagnosed 7/2019 let the fun begin...

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers!
Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or pdsa@pdsa.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.