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Support Groups

  • teenwithitp02
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  • Current platelet count: 19,000
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5 years 9 months ago #69426 by teenwithitp02
Support Groups was created by teenwithitp02
Hello everyone
I've seen a section of the website here with support group meetings, and I was wondering if you had to do anything to join? I know with Covid alot of things have been cancelled but I was wondering if they had been moved to Zoom or a similar software? If anyone has information on these, I would love to know. Thank you!

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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5 years 9 months ago - 5 years 9 months ago #69473 by Hal9000
Replied by Hal9000 on topic Support Groups
Teen, I see that you are in TX. I went to the Dallas/Ft Worth meeting several years ago before the Houston group started. Now I go to the Houston meeting since that is where I live. Joining PDSA is not required. LOL, when I went to the Dallas meeting, after being diagnosed, I asked questions one after the other for an hour straight. From the support meeting page looks like you need to send an email to Jody Shy. She can direct you further. If you are in the DFW area, I think they have a meeting whenever there is demand - so the schedule is not fixed. For the Houston area, going to Zoom created the biggest turn out ever on the last meeting. Apparently because no one needed to drive.
ITP Types and Treatments by HAL

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  • teenwithitp02
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5 years 9 months ago #69476 by teenwithitp02
Replied by teenwithitp02 on topic Support Groups
I sent an email to Jody a few days ago and am waiting on a response. I would like to connect with more people with ITP, the only person I really know is my friend Kira and she lives in the UK! How many people came on the zoom?

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  • Hal9000
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5 years 9 months ago #69522 by Hal9000
Replied by Hal9000 on topic Support Groups
I think there was about 12 or so in all. Since the annual PDSA conference is the first and second of August, Jody may be very busy right now. If she doesn't get back to you soon, I can ask the moderator of our local group what to do. Might need parent involvement, I dunno.
ITP Types and Treatments by HAL

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  • teenwithitp02
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5 years 9 months ago #69542 by teenwithitp02
Replied by teenwithitp02 on topic Support Groups
I got a response, and I'm on the list now for the meetings.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.