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Promacta and "Steriod Blimp" without the Err moodiness, Anyone?

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7 years 2 months ago #65915 by ms4pdsa
Promacta and "Steriod Blimp" without the Err moodiness, Anyone? was created by ms4pdsa
Promacta helps me, I feel like it is the reason for my "steriod blimp" gain just without the extreme irritablity and without Prednisone (which is on my "Don't even think about it list to medical staff.). I know there has to be others that have this side effect.

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  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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7 years 2 months ago #65920 by karenr
Replied by karenr on topic Promacta and "Steriod Blimp" without the Err moodiness, Anyone?
What is your Promacta dose? I'm on 25 mg every other day during my prednisone taper (currently 6.5/6 alternating days). I didn't have the blimp side-effect during my 18+ years on pred--but now am having the opposite problem, which is rather scary--can't keep my weight up. I don't assume it is the drugs causing this--but I don't know WHAT is causing it.

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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7 years 2 months ago - 7 years 2 months ago #65925 by mrsb04
Replied by mrsb04 on topic Promacta and "Steriod Blimp" without the Err moodiness, Anyone?
Karen I haven't put on weight at all during 4.5 years of steroids or since starting Promacta 2 years ago.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.