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Rituxan success as adult after failing in youth

  • pegstirling
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  • My son, Aaron, dx at age 5 (5/2001), though he was in remission for 5 years after a vaccine, came out of remission and lives at 3k. Did 5 years of treatment with but then stopped working, back at 3k. He is basically non responsive to all regular treatmen
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7 years 8 months ago #64338 by pegstirling
Rituxan success as adult after failing in youth was created by pegstirling
Aaron is now 22 dx at age 5. We did Rituxan at age 8 in a drug trial, minimal response over a year made it to 30k from 2k but he leveled up slowly. Remission for 5 years and age 16 he crashed we tried Rituxan again, no real response but still in midst of puberty. He pretty much was 2K for a year or so and then we did Nplate for the last 5 years but has stopped working and his count today 1k, no treatments for 2 weeks. Considering trying Rituxan again now that he is an adult. Anyone know of any stories where it didn't work and then maybe it did.
Not big on treatments in general. Thanks for any advice. It's been years since I've been here. When I found this site in 2001, it was so helpful.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 8 months ago #64350 by Sandi
Replied by Sandi on topic Rituxan success as adult after failing in youth
Well, he didn't seem to have a quick response, but it's possible that Rituxan jump-started the remission. I don't know if it will work or not but it might be worth a try.

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.