Platelet Disorder Support Association

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Back to UH OH Land

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7 years 8 months ago #64215 by Lizabeth1
Back to UH OH Land was created by Lizabeth1
Tavalisse failed, avatrombopag costs $54K/mo., isn't approved for more than 5 day dosing anyway, and insurance says "No". Everything else has failed so I await an appointment with the specialist in Durham. And my phone/ 'net access is screwed. Wheeee ha ha ha.

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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7 years 8 months ago #64216 by Hal9000
Replied by Hal9000 on topic Back to UH OH Land
How about this to ask the specialist.
Doctor, if it's my liver destroying platelets, what can be done?
ITP Types and Treatments by HAL

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  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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7 years 8 months ago #64218 by dru
Replied by dru on topic Back to UH OH Land
So sorry to hear this. Hang in there. Hope the specialist will be able to help.

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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7 years 7 months ago - 7 years 7 months ago #64605 by Hal9000
Replied by Hal9000 on topic Back to UH OH Land
Lib, give me some good news. Tell me you take zero Vitamin B9 and that you'd love to try some.
pdsa.org/discussion-group/7-treatment-general/30169-no-response-to-ivig-ack.html#64535
ITP Types and Treatments by HAL

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.