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Update on Dougie

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8 years 3 weeks ago #63187 by alisonp
Update on Dougie was created by alisonp
Dougie was just home for the Easter holidays and caught up with some medical appointments. He's had the other side of his nose cauterised as he's been having some problematic nose bleeds, and his count was 32 which we are both pretty pleased with. He doesn't have another appointment until the Christmas holiday unless he starts to have any problematic symptoms.
After the first couple of years I stopped hoping for normal counts and started thinking over 30 would do........and indeed it does!!!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 3 weeks ago #63188 by Sandi
Replied by Sandi on topic Update on Dougie
He's come such a long way! I'm so glad that he's living such a normal life! You did a great job, Alison!
The following user(s) said Thank You: alisonp

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8 years 3 weeks ago #63197 by alisonp
Replied by alisonp on topic Update on Dougie
Thanks Sandi. I've never met his new haematologist but he seems like he's got a very similar approach to the bloke at the children's hospital that he used to see. I sometimes read the PDSA Facebook page and there seem to be a lot of people who have an exaggerated perception of the risk of not treating and little understanding of the risks of treatment - and that seems to mean an awful lot of over treatment is going on!

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.