Back in the hospital

Woke up Sun with a blood soaked pillow, Jim drove me to the nearest ER for transport to UVA with no "detectable" platelets. 3 yesterday, but 0 again today. IVIG started at 10am today, oral dex., they're thinking about more Rituxin but I have Hep B antibodies so they want to titre for that 1st. I did not have it in screening before we married in 2010, not sure if it's possibly from the dose last week. Sad, a little scared, really missing that decade of remission from the Nplate. Man, I managed 30+ years with only 2 hospitalizations, and now it feels like "wham! Wham!! Wham!!". Dammit. OPM.

Hopefully the IVIG kicks in quickly. Don't get too down, sounds like Nplate might be on the horizon again.

what do you think brought on this last episode of low platelets?

Hello Lib, commiseration but I'm with you. I haven't been here for years either. Enjoyed a lovely sort of remission after Nplate but count on Monday zero. Back on Nplate but as it doesn't kick in for a few days taken some pred as well. Not as much as they wanted me to take of course but they are sneaky and want me back today for another count.

I know what caused my crash.. I had the flu jab last September which gave me artificially high counts for 6 months, now comes the crash. Three weeks ago I had a count of 220, Monday zero. Won't be doing the flu jab again.

No clues to the crash beyond mind bending stress. DMann, why do you think the Nplate would start working again after such as epic fail?

10 year remission from it before is my only guess. Did you mean that you were still taking the Nplate when this crash happened?

Hey D. Yep, I was on the Nplate while crashing, as we upped my dose tenfold. I went from having a 110 dose hold me safe for years to hitting zero while on a dose of 1000. Anyway though, it seems like trying Fostamatinib is well worthwhile. I'm cautiously optimistic, a BIG change from a few days ago!