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Anyone have a high red blood cell count (Polycythemia) ?

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8 years 3 months ago #62242 by Tad Moody
Anyone have a high red blood cell count (Polycythemia) ? was created by Tad Moody
Anyone here have, or ever had a high red blood cell count?
I'm an adult with ITP since 2008. I've had a high red blood cell count for a few years now not caused by low oxygen in the blood, sleep apena, heart/lung problems etc.), and my hematologist decided it was Polycythema Vera, so it's time for phlebotomy (Blood-letting!) to treat the high RBC. I'd heard (not from a reliable source) that Promacta can cause a high RBC. I discussed this with the my hematologist, and we decided to stop the Promacta and see what happens. (the Promacta was only getting me to a platelet count of +- 10,000 anyway). I stopped Promacta, on 11/29/17 and my RBC (Normal high at my lab is 5.8). Well, my RBC went from 6.08, 6.30, 6.16, 5.93, 5.70, 5.74, and 5.40 on 1/06/18. The Dr. decided to postpone the phlebotomy and keep an eye on my RBC. Circumstantial evidence certainly, but has anyone else experienced a high RBC associated with Promacta?

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8 years 3 months ago #62257 by momto3boys
Replied by momto3boys on topic Anyone have a high red blood cell count (Polycythemia) ?
I've been on Promacta for almost 2 years and haven't had any problems with high RBC. Kind of interestingly, my red blood cell values tend to be on the lower end and Promacta causes anemia for me (beyond my normal tendency towards anemia from ITP related bleeding).

Interesting how different we all can be with regards to side effects. I hope you are to figure out what is going on with your RBC!
The following user(s) said Thank You: Tad Moody

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.