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a suggestion

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8 years 5 months ago #61801 by johnmerrick
a suggestion was created by johnmerrick
i don't think you have this but i think it would be a good idea to put together.... a list of knowledgeable hematologists(on ITP) in the various states(america) and provinces(canada) and elsewhere. so someone new to ITP can look at that list and maybe get a doctor from there. this would eliminate the possibility of someone spending months or longer with some doctor that really doesn't no ITP.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 5 months ago #61802 by Sandi
Replied by Sandi on topic a suggestion
John:

That information is on the PDSA website.

www.pdsa.org/resources/find-an-itp-doctor.html

Most people don't know when they start with ITP that their doctor doesn't know much about it. They just do what they are told to do. Some people never figure that out because they don't research on their own. I sure didn't know for quite a while that my doctor didn't know much until I did start researching. After I did and started to make suggestions, my Hemo admitted that he didn't know much and told me that I knew more than he did.
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8 years 5 months ago #61803 by johnmerrick
Replied by johnmerrick on topic a suggestion
i didn't see that resource find a doctor page.

well at least maybe others who don't know it's available will now.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.